I hardly take anything, but I eat wheat. I dunno....pretty much given up trying to figure out what this is, or how to make myself feel better....Even with a +ANA these days...I am not convinced. I had PN way, way before the AI disease was diagnosed....like decades.

Xanax all by itself is a miserable drug. The rebound when it wears off is almost incapacitating. All benzo's seem to be like this, with low dose valium the least....even baclofen, which is similar to a benzo has a benzo like withdrawal, which is hideous.

I am glad you feel better being gluten free. Being gluten free can not be easy.

I may give the gluten free thing a try after Thanksgiving. But my GI swears it isn't it....he has been wrong about other things.

To be honest, most doctors do not think about celiac, and rarely ever gluten intolerance. Then you have the pharmaceutical companies who don't want gluten mentioned since there are no meds for this problem.

Just so you know, most of us are addicted to gluten, especially wheat. I used to think toast was my best friend. Wheat calls out our names and we want it. Many of us go through a true mourning period when giving up gluten, sad, isn't it?

I have had severe neuropathy (no pain, just numbness) for over a year. It was mild and tolerable, but I had IVIG done anyway. Less than a month later, I got pregnant, and it got terrible. My feet, hands, neck, head, arms, back, etc. Around the same time as the IVIG, I was also diagnosed celiac. My neuropathy has never gotten better, my son is 9 months old. What would make it get so drastically worse in that short time frame? I also have not had a menstrual cycle since.I feel I am at the mercy of my neurologist who seems utterly stumped. Any ideas??

Are you taking any supplements? Multi vitamins, B12, B Complex? Are you positive you are gluten free? Gluten hides in so much and it's very easy to be getting gluten when you don't realize it's in something you think is safe. Maybe you have other intolerances. It wasn't long after I went gluten free that I found soy was just as bad for me, then corn. What do you eat? Have you checked out thge vitamins, if you are taking them to be sure there is no gluten in them. Shampoos and soaps can contain gluten and you can get glutened by them. You need to give me more of an idea what is going on in your life. Feel free to email my aol addy too, just put celiac in the subject line the first time!

Sometimes when women get pregnant, there can be a shift in thyroid function. I think this is what happened to me. During and after my pregnancy I had severe problems with my hands.

My blood work was sort of normal... but I developed a goiter, and then went to a specialist who ordered a technicium uptake (radioactive) which showed my left lobe was not working.

After getting the proper replacement my feet (which were numb by then) and my hands improved dramatically.

No periods? That suggests an endocrine hormone problem too.