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#1 | ||
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New Member
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I have had severe neuropathy (no pain, just numbness) for over a year. It was mild and tolerable, but I had IVIG done anyway. Less than a month later, I got pregnant, and it got terrible. My feet, hands, neck, head, arms, back, etc. Around the same time as the IVIG, I was also diagnosed celiac. My neuropathy has never gotten better, my son is 9 months old. What would make it get so drastically worse in that short time frame? I also have not had a menstrual cycle since.I feel I am at the mercy of my neurologist who seems utterly stumped. Any ideas??
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#2 | |||
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Member
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Are you taking any supplements? Multi vitamins, B12, B Complex? Are you positive you are gluten free? Gluten hides in so much and it's very easy to be getting gluten when you don't realize it's in something you think is safe. Maybe you have other intolerances. It wasn't long after I went gluten free that I found soy was just as bad for me, then corn. What do you eat? Have you checked out thge vitamins, if you are taking them to be sure there is no gluten in them. Shampoos and soaps can contain gluten and you can get glutened by them. You need to give me more of an idea what is going on in your life. Feel free to email my aol addy too, just put celiac in the subject line the first time!
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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#3 | |||
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Wisest Elder Ever
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Quote:
My blood work was sort of normal... but I developed a goiter, and then went to a specialist who ordered a technicium uptake (radioactive) which showed my left lobe was not working. After getting the proper replacement my feet (which were numb by then) and my hands improved dramatically. No periods? That suggests an endocrine hormone problem too.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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