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Old 11-24-2010, 03:18 PM #1
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I have had severe neuropathy (no pain, just numbness) for over a year. It was mild and tolerable, but I had IVIG done anyway. Less than a month later, I got pregnant, and it got terrible. My feet, hands, neck, head, arms, back, etc. Around the same time as the IVIG, I was also diagnosed celiac. My neuropathy has never gotten better, my son is 9 months old. What would make it get so drastically worse in that short time frame? I also have not had a menstrual cycle since.I feel I am at the mercy of my neurologist who seems utterly stumped. Any ideas??
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Old 11-25-2010, 01:41 PM #2
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Are you taking any supplements? Multi vitamins, B12, B Complex? Are you positive you are gluten free? Gluten hides in so much and it's very easy to be getting gluten when you don't realize it's in something you think is safe. Maybe you have other intolerances. It wasn't long after I went gluten free that I found soy was just as bad for me, then corn. What do you eat? Have you checked out thge vitamins, if you are taking them to be sure there is no gluten in them. Shampoos and soaps can contain gluten and you can get glutened by them. You need to give me more of an idea what is going on in your life. Feel free to email my aol addy too, just put celiac in the subject line the first time!
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Old 11-25-2010, 02:05 PM #3
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Quote:
Originally Posted by lostbuthopeful View Post
I have had severe neuropathy (no pain, just numbness) for over a year. It was mild and tolerable, but I had IVIG done anyway. Less than a month later, I got pregnant, and it got terrible. My feet, hands, neck, head, arms, back, etc. Around the same time as the IVIG, I was also diagnosed celiac. My neuropathy has never gotten better, my son is 9 months old. What would make it get so drastically worse in that short time frame? I also have not had a menstrual cycle since.I feel I am at the mercy of my neurologist who seems utterly stumped. Any ideas??
Sometimes when women get pregnant, there can be a shift in thyroid function. I think this is what happened to me. During and after my pregnancy I had severe problems with my hands.

My blood work was sort of normal... but I developed a goiter, and then went to a specialist who ordered a technicium uptake (radioactive) which showed my left lobe was not working.

After getting the proper replacement my feet (which were numb by then) and my hands improved dramatically.

No periods? That suggests an endocrine hormone problem too.
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