[rose_thorn98]

I saw a new neurologist today. He actually spent 1 1/2 hours with me!
He ordered me the paraneoplastic panel, glucose tolerance test, and the anti mag test. Will do that day after Thanksgiving.

He basically said that I have chronic neuropathic pain and erythromelalgia (this is his "label" for now). And that at this point can't call it sfn. Did say however highly likely that with time may show positive for SFN biopsy. Wants to do biopsy and EMG again in one year. He said that they may not have a diagosis for me yet, but that with time I will probably show something. He was honest and assured me that I was not getting the blow off, that he will keep monitoring me. He referred me to to pain specialist, and pain management program my HMO does (which I've heard people rave about). He said that he feels that at this point I need to get adequet pain control and also emotional support that focuses how who to live with chronic pain. I agree with that! He did say that what ever I have is not legnth dependant.

I think that at this point I may have to accept what he is telling me. He is the 3rd Dr. to give me this "we don't know yet, but it might evolve and then we'll know more" speech. I'm just getting to a point where I want to live my life again instead of being consumed with "what's wrong" thoughts always in the back of my mind. At least if I can get some good pain control I'll be able to live as my old self again. I'm going to wish for the best.