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#1 | ||
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Magnate
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With frequent refueling interludes. Preferably, gluten-free pizza.
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#2 | |||
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Member
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I read an article/abstract I found on pubmed addressing this question exactly. The conclusion was that in the absence of any symptoms indicating a new disease is present, there is NO reason to repeat the work-up of an idiopathic neuropathy. In terms of repeating the nerve studies themselves, this wasn't addressed, as it was about idiopathic. For that, the answer is it's not necessary unless something really changes.
But repeating tests did not reveal any new diagnoses over time, as I recollect. Gads my humor is gone. Or something else, cause it did not cross my mind. Until you guys put it there!
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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#3 | |||
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Senior Member
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OK you guys, cut it out!! This is supposed to be a neuropathy forum. Get serious.
![]() Billye ![]() |
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#4 | |||
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Member
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At my age, sex is serious. I also do it three times a 465dfsal'jklyt 4c (oops, darned cat walked on my keyboard again).
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David - Idiopathic polyneuropathy since 1993 "If you trust Google more than your doctor, than maybe it's time to switch doctors" Jadelr and Cristina Cordova, "Chasing Windmills" |
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#5 | ||
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Senior Member
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#6 | ||
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Magnate
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Never thought such a 'leader' would get such a 'reaction'?! Ladies, thank you for some sane, rational responses grounded in that aspect we pretend to call 'reality'? Guys? Hope you're really, really Romantic to your SO's ....I'd think from your comments, that, you'd be otherwise....well, DOG-meat? Albiet, still displaying some sort of 'charm'.
I realize that after a certain 'point', docs have to super-justify every extra test/therapy or whatever. I've gotten the 'slip' so to speak possibly due to the Cancer and possible Paraneoplastic aspects, tho NO doc seems to be inclined to persue this quarter at all.. I just wonder if a]leaving it open-ended, gives them more lee-way and b] that 'continued therapies' would be more justified under already done testings. The IVIG IS working, albiet at almost-micro-increments[each month], it's adding up? At first by leaps and bounds, now, by teeny bits. I simply don't want to be 'cut off' because I'm improving. A very reasonable fear I think, Could YOU give up quick your Neurontin/Lyrica or whatever? THAT is my fear, albiet a more expensive one? I do NOT want to disappear due to pain....now I've found a 'modulator'. BTW GUYS: When I am in extreme PAIN - Well, I tend to grow FANGS? Then BITE? and I am not..at all NICE! Thanks folks for all good words - j |
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#7 | |||
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Member
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Quote:
Well then Brian, if you thought this was funny, than I'd love to know what you think when they say they are "rooting for you"!! LOL ![]() ![]() ![]() I have been smiling for days ![]() I always thought that this forum had a certain "je ne sais quoi". |
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#8 | |||
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Member
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I would never repeat a test if I thought a treatment or benefit depended upon it's being abnormal. Not worth the risk.
I am jealous of each and every one of you with a "SO". Oh well. Ya never know...
__________________
LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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#9 | ||
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Senior Member
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Quote:
Geez, they would have to be good to be able to do that for me ![]() ![]() ![]() I can't work out when i hear Americans say that they are going " down under " for a while, i wonder what they mean ![]() ![]() ![]() take care Brian ![]() |
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#10 | ||
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Magnate
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--for those without SO's, the search for Mr./Ms. "Right" must be put on hold, as Robin Williams says, so that Mr./Ms. "Right Now" can be utilized . . .
I do wonder, given the difficulties of relationships, whether the "friends with benefits" generation may have hit upon a good idea, provided they practice safely, of course. My joke is that since my wife is an ultramarathoner, and I work mostly nights/weekends, we rarely see each other and so get along fine. ![]() |
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