Which tests for those of us w/PN should be done HOW often?

Nerve Conduction: Every how many months?/Years?
Spinal Assay: Same ?s Months/Years?
Blood Work: Which tests? How often? Months/Years?

Are there pro or con aspects to testing? If so, what?


Thanks folks! In advance - j

Unless my progression speeds up or something else is going on, im done getting poked and prodded except for EMG/NCS every 2 years to keep track of progression.

What a disappointment. From the title, I thought this was a sex survey.

David, you & I must think alike .
The answer to blood work (depends what you're looking for)
6 months to a year- the others:
Spinal - as warranted by doctor's conclusions,
NCS, at least every 2 years,
annually if symptoms change.
Sex ? = well.......(Howzabout 3x a......... ??)

Honestly, I know we all can get a 'bit' dry here w/all the med issues and all...BUT I never thot you gentlemen were that frisky?. Hope your SO's LOVE it all! Obviously the PN's not affecting everything?

My blood is being drawn 'a la vampireness quarterly, for two to 3 docs, but I've not had any nerve tests in 3 years...and since I'm on the IVIG...I don't think the blood work that's being done is more than minimum/basic.. I wonder, as It'll be 3 years soon since going on the IVIG and I've not seen any protocol at any insurance web sites I've sussed out.. I guess, I should suss out insurance sites more thoroughly, cause I don't want to be surprised and have them 'pull the plug' so to speak. Consequences would not be good! You would not want to be 'round me as ONE CRANKY person during any drawn-out appeals process [as they tend to be]. I DO have confidence that my neuro & staff is pretty expert at such things tho. And am grateful..But since it's been a while...when I next see him-I now plan to raise the 'update' test issue. Hey, it'll give him another way to make $ off of me.. things have been slow in that quarter of late.

Now you GUYS...go off and have 'fun' w/someone you really truly LOVE! - j

Dagnabit, Bob B - you didn't finish: "Sex ? = well.......(Howzabout 3x a........." - were you referring to 3x 'a day'; 'a week'; 'a month'; 'a year'; 'a lifetime'; or what????

With frequent refueling interludes. Preferably, gluten-free pizza.

I read an article/abstract I found on pubmed addressing this question exactly. The conclusion was that in the absence of any symptoms indicating a new disease is present, there is NO reason to repeat the work-up of an idiopathic neuropathy. In terms of repeating the nerve studies themselves, this wasn't addressed, as it was about idiopathic. For that, the answer is it's not necessary unless something really changes.

But repeating tests did not reveal any new diagnoses over time, as I recollect.

Gads my humor is gone. Or something else, cause it did not cross my mind. Until you guys put it there!

OK you guys, cut it out!! This is supposed to be a neuropathy forum. Get serious.

Billye

At my age, sex is serious. I also do it three times a 465dfsal'jklyt 4c (oops, darned cat walked on my keyboard again).