Originally Posted by gardening1

Hi,
I am new to this site. I have a question. I started having crawling sensations in my arms in 2002. It got better. I had a NCV done then and it was normal. Doc at UAB said it was PN that didn't show up.

My symptoms started again in September 2010. Well the small fiber skin test is fairly new, right? I am being tested for that and will get the results in 2 weeks. The doc seems to think that if nothing shows up on that test, then I don't have neuropathy and nothing is really wrong with me. I've already had a recent NCV and it was normal. My current symptoms are crawling sensations all over, extreme sensitivity to touch, and occasional shooting pains.



Mine also come and go. I do not have sensitivity to touch, but I know that is a PN symptom. My symptoms started in May 2009. I also had a negative small fiber skin test and NCV and EMG.
I believe it means no damage to nerves, but the sensations are real and my Doc. calls my Dx. Paresthesia, to me that is a symptom, not a dx., but that is the best he can give me with my neg. tests. I also believe as time goes on, damage may occur and retesting may be necessary. I don't think the result of damage is carved in stone, but it may occur. If one can find out the cause of the PN, we could prevent progression and damage. Mine appears to be idiopathic, no cause found, therefore no way to control outcome.

This is my "take" on all of this.