First, check out this site ...up in the 'stickies', then? This one:
http://neuromuscular.wustl.edu/antibody/motpn2.htm
Search and READ this site thoroughly, tho slowly [And, I mean the WHOLE site...every nook and corner!]. Trying to take in too much info at one sitting can turn your brain into peanut butter!
In the end? You will have a true respect for neuo docs who search for the causes of YOUR problems vs. those who don't. This site is pretty highly respected in the medical world so if any doc goes 'Pooh'? You know what to do about THAT doc? Tell him to go see this site or get a refresher.. [not really-best not to aggravate them.] but rather go seek a second or third opinion to back up your instincts followed by your research and TEST you properly.
Dr Smith? IF you show true Autoimmune issues? Believe me, many many 'other' docs will SAY you don't have them! No matter what the results are, unless BY IMPECCABLE SOURCES! My own tests Spinal fluids and blood workups [many] were done by VERY VERY respectable sources. CIDP it is, and when one opinion necessitated a 'consultation' by the head of a competing 'teaching hospital's' neuro head? That head #2 contested it at first-stating I had to be wheelchair bound before getting/benefiting from some treatments?, until I cited my research to that time about PN vs CIDP and well? Now, years later? That #2 neuro head has come around... #1 Neuro head got it right w/all the right tests that are 'Standard' Internationally now. Go to the site I referred to Gstein and READ IT! Go to the top quadrants about the testing and also all the other neuro issues one mite have! No doc can know all? Many have biases. Chose your doc well! One that will help you get better! IF not diagnosed and you do NOT persue diagnosis WHILE YOU ARE ABLE TO? It'll be too late -later.
Learn or not. To Complain w/o learning? Not for me.
Hugs and heart to all! 's ! - j