If that stuff can take off s finish on a piece of furniture,, imagine what its doing to exposed skin

Something I've been thinking a lot about lately - another environmental disease/health issue we (humans) may be bringing down upon ourselves...

I recently met with a second neurologist & more testing, but I've been hesitant to post anything until the test results were in. My follow-up to discuss them with neurologist isn't for another month, but my PCP is tied into the same computer, and happy to give me the results over the phone (hardcopies to follow).

Once again, due to my weight (secondary to intractible pain) diabetes was suspected. I explained that I'd been tested several times before, to which he replied that blood test screenings aren't accurate (wish I'd known that before) - so he ordered a glucose tolerance test. Negative again, as were the other blood tests, so I'm expecting another dx of idiopathic.

Having gone through the list during the initial visit, I'm pretty much left with suspected environmental exposures, but that may have been decades ago and the results surfacing only now. At least none of the places I've lived were built on chemical dumps, etc.

I'll probably never figure it out (and it likely wouldn't matter if I did) - another in a series of medical blindsides to cope with...

“There is no psychiatrist in the world like a puppy licking your face.”
— Ben Williams

[QUOTE=invisable;721820]I have archoiditis. You might look up the symptoms for ARC. Good luck

Yep, I'm in this boat too.
Numbness for 3yrs in limbs, pain, muscle twitching, etc.
No idea how it started, it just did.
Tested for diabetes, and everything else.
After 3yrs of tests and a review of current and new symptoms each visit, I received a diagnosis of small fiber neuropathy in 2008. The Dr continued research, putting in new information as I experienced it. He'd give me a more refined diagnosis than the SFN. In the past year he stated I might have Lamberts Aeton, due to the amount of muscle pain. Still having pain, muscle and nerve. Still have the twitching all over. Since October of this year both arms feel tense, continually pulling muscles, etc. My Dr is looking into this, but still no diagnosis. He's one of the best Dr's in the area, at one of the best clinics in the region. There has been no shortage of research or tests on his part. But with Autoimmune conditions, the dern things are SO similar that it takes awhile for your body to put up a "flag" to show which direction the Dr needs to go next. I'm learning this, although I'm not fond of the pain, or the slowness of a sure diagnosis, but the most important thing is finding a Dr you can work with, that actually LISTENS to you. Each time I have a visit, we get closer to what I have. It's frustrating, especially the amount of pain(!) but eventually I'll get a diagnosis.

First, check out this site ...up in the 'stickies', then? This one:
http://neuromuscular.wustl.edu/antibody/motpn2.htm
Search and READ this site thoroughly, tho slowly [And, I mean the WHOLE site...every nook and corner!]. Trying to take in too much info at one sitting can turn your brain into peanut butter!
In the end? You will have a true respect for neuo docs who search for the causes of YOUR problems vs. those who don't. This site is pretty highly respected in the medical world so if any doc goes 'Pooh'? You know what to do about THAT doc? Tell him to go see this site or get a refresher.. [not really-best not to aggravate them.] but rather go seek a second or third opinion to back up your instincts followed by your research and TEST you properly.
Dr Smith? IF you show true Autoimmune issues? Believe me, many many 'other' docs will SAY you don't have them! No matter what the results are, unless BY IMPECCABLE SOURCES! My own tests Spinal fluids and blood workups [many] were done by VERY VERY respectable sources. CIDP it is, and when one opinion necessitated a 'consultation' by the head of a competing 'teaching hospital's' neuro head? That head #2 contested it at first-stating I had to be wheelchair bound before getting/benefiting from some treatments?, until I cited my research to that time about PN vs CIDP and well? Now, years later? That #2 neuro head has come around... #1 Neuro head got it right w/all the right tests that are 'Standard' Internationally now. Go to the site I referred to Gstein and READ IT! Go to the top quadrants about the testing and also all the other neuro issues one mite have! No doc can know all? Many have biases. Chose your doc well! One that will help you get better! IF not diagnosed and you do NOT persue diagnosis WHILE YOU ARE ABLE TO? It'll be too late -later.
Learn or not. To Complain w/o learning? Not for me.
Hugs and heart to all! 's ! - j

[QUOTE=tommyd;723891]What test did it actually take for them to determine this was your dx?

I definitely fit the bill with the bizarre neuro sensations, no motor problems though. I have herniated discs in neck and back seen on MRI, but this disease was never mentioned.