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Old 01-06-2011, 11:03 PM #1
dahlek dahlek is offline
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Default The neurontin could be causing some reactions?

Please read the full prescribing information below?:
http://www.pfizer.com/files/products/uspi_neurontin.pdf
Especially pgs 18-amlyopia, & pg 24 'Special Senses'.
I've experienced also a hyper-startle effect, but I'm not sure if it was due to the PN condition or the meds I was on at the time. I've been off most PN meds for at least 3 years now, but I STILL experience they 'startle' thing about 1-2 times a week.
I'd started having vision issues after I'd been diagnosed...I'd had some tinnitus prior to that, but now it is truly noticable. The vision problems have lessened greatly. [After 8 years]
So? State? You aren't crazy! Not, not! NOT! So many of us with neuropathy problems have these to different degrees, some negligible, others to a noticable degree. Truly it's part and parcel of what makes us ALL so hard to truly get a diagnosis! Hang in there and should you have problems? LEARN how to articulate them in sort of 'doc speak' to hit home your concerns. You will learn lots about that here! Keep faith in yourself, and in the prospect of getting better! !!'s - j
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Old 01-07-2011, 08:05 AM #2
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I guess I haven't thought about my tinnitus being neuropathy related.What was I thinking???? Duh! I'm sure it is. When my neuropathy symptoms worsened, so did the tinnitus, and it has never gone away. It's always buzzing in my head, sometimes I can ignore it, other times like now, it's very loud. Funny thing is, even when it is at it's loudest, I can still hear different pitches of sound, like noises my bluetooth makes when in use. The sounds are like those you hear during hearing tests.

It makes sense it's all connected!
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Old 01-07-2011, 09:12 AM #3
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Hi,

You don't specifically say what kind of vision sensitivity you experience, but write you're on 1200 mg neurontin qd.

Was on it twice (in 2003 for post-shingles neuropathy) and again in early 2010 when the small fiber neuropathy began. In 2003, suddenly couldn't focus my eyes normally, was dizzy and told to stop. Was fine again in no time, and it turned out the neuropathy was gone.

Tried neurontin again last year for the SFN and didn't last more than a couple of days - same problem - and on a much lower dose than you're taking.

You might want to do a web search about the side effects of neurontin.

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Old 01-07-2011, 10:45 AM #4
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Many weird sensations can be attributed to PN,
but in most cases it usually is the meds.
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