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Old 10-18-2010, 05:48 PM #1
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Default B12 deficiency and subacute combined degeneration

I have a B12 deficiency and subacute combined degeneration of my spine. My B12 level was 150 and now with monthly shots and B12 sublinguals over 2000. Any help would greatly be appreciated.
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Old 10-18-2010, 10:12 PM #2
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Quote:
Originally Posted by tgcasey View Post
I have a B12 deficiency and subacute combined degeneration of my spine. My B12 level was 150 and now with monthly shots and B12 sublinguals over 2000. Any help would greatly be appreciated.
What exactly are you look for help with? If your B12 has gone up to over 2000, it sounds like you are doing everything right and it should be just fine. I'm not sure what you are wanting help with--please clarify.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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Old 10-19-2010, 02:37 AM #3
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One of our members, rose, had this problem also.

She often posted on the rocky, slow improvement she experienced once she normalized her blood levels of B12:

examples:
http://neurotalk.psychcentral.com/sh...978#post516978

http://neurotalk.psychcentral.com/sh...449#post181449

You can search her in "members list" and read all her posts.

From what I can gather, it can be a slow road back.
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Old 10-19-2010, 08:06 AM #4
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Rose has created a website about her B12 knowledge-which is extensive

http://roseannster.googlepages.com/home
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Old 01-12-2011, 08:28 PM #5
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Smile subacute combined degewneration

Quote:
Originally Posted by smae View Post
What exactly are you look for help with? If your B12 has gone up to over 2000, it sounds like you are doing everything right and it should be just fine. I'm not sure what you are wanting help with--please clarify.
Thanks Sarah sorry I've taken so long to respond. My concern is with my neuropathy in feet, legs and hands, Do they stay that way of numbness, and does the feeling come back. My walking and ability to grasp things is diminished greatly Thanks

tgcasey

Last edited by tgcasey; 01-12-2011 at 08:50 PM. Reason: spelling
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Old 01-13-2011, 07:56 AM #6
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To tgcasey:

You might have other nutrient deficiencies ... the B12 is only one nutrient that supports nerve functions.

Malabsorption may be occurring for you in the GI tract. Gluten intolerance and inflammatory bowel diseases like Crohn's contribute to malabsorption.

You may have taken medications in the past that damage nerves.
You may be exposed to some toxins, solvents.

You may have impaired glucose issues.

Here is the link to our subforum, where there are many posts you can read, and see if anything seems familiar to you.
http://neurotalk.psychcentral.com/forum119.html

You may have genetic issue that is occurring with your low B12.

This is a large subject, with many variables.
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Old 01-13-2011, 10:12 PM #7
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Smile Subacute combined degeneration

Thanks I just walked in the door. Met with the Neuro doctor today and I asked about my condition. She said that I have spinal cord degeneration damage which causes the nerves to act or respond like neuropathy. My question is does anybody have this disease like me due to a B12 deficiency.
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Old 01-14-2011, 09:05 AM #8
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Do a search on this BB using 'B12"
You will have many posts regarding B12 & PN.
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Old 01-14-2011, 11:21 AM #9
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Rose, who used to post here, has this.

She is not currently posting, but if you do a search of her name, you can read her previous posts.

Read her webpage, which is already on this thread.

Where you are now, is an extreme result of low B12 levels.

There is a possibility for remyelination of your nerves, and this may be enhanced by supplements. The MS community shares this problem.

Supplements for remyelination:
http://www.msrc.co.uk/index.cfm/fuse...how/pageid/772

MS shares similar damage to neurons, as combined degeneration. Look over that list and see what you want to pursue. In general myelin is restored by Omega-3 fatty acids and B12, B6 and folate. The RX vitamin Metanx has the 3 Bs in activated form to help with this process.

Your recovery depends on how long you had this, and how you provide the healing components.
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Last edited by mrsD; 01-14-2011 at 02:08 PM. Reason: fixing spelling
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