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#11 | ||
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Quote:
P.S. I live in the US. Last edited by invisable; 02-03-2011 at 09:35 PM. Reason: addition of words |
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#12 | |||
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I don't know if the brand name is still out there, but I just got a refill for Amitriptyline. Not that it seems to help me at all, but compared to most everything else, it's at least cheap! I'd rather pay a little money for something that doesn't work for me than the whole lot that I'm paying for the other things that don't work for me.
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PPMS Rx 2013, symptoms since 2000 |
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#13 | ||
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Just refilled an rx for Amitriptyline. It's still available in NYC.
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#14 | ||
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New Member
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MrsD- You commented on ... the potential for healing nerves. I saw something similar in a medical publication and asked my PN specialist about it? He seemed surprised and asked for an exact reference. So I later found it and forwarded it to him. No response. Do you know of any follow-up work or think there is a good avenue for pursuing this?
I currently take 75 MG's each night which dulls the pain for me. |
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#15 | |||
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Wisest Elder Ever
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Quote:
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#16 | ||
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Quote:
That is pretty exciting news. |
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#17 | |||
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Wisest Elder Ever
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__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | invisable (02-08-2011) |
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#18 | ||
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have now tapered down from 300mg lyrica to 75mg.
have finally settled on amtryptoline very low dose 10mg. I have less pain then when the doc initially put me on 300mg lyrica and 25mg nortyptoline 2 years ago. The swelling in my feet has gone down which i suspect was not from neuropathy but lyrica. My worst pain days were when swelling was highest compressing the nerves. I will have lyrica out of my system next week. Anyone else tried tapering down without consulting the doc? Just have a feeling that many are taking a large dosage of drugs that may not be effective anymore but continue anyway. |
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#19 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Does a phone call count? My wife has tapered down on a couple of things, but called the doc to inform him. Never encountered any resistance.
Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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#20 | ||
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Member
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Hello,
I came off of Neurotin by cutting the dose in half every week, also was done with Lyrica, Tramadol and Methadone. These meds are what I have taken intermittently over 6 year span. Have been on amitripyline going into week 2 12mg at night and 12mg in the am plus a baby asprin. Pain is a little higher but way less side effects, bowel is getting back to normal. I let the doctors know after the fact. They were interested in the effects of using Lyrica. If I were starting all over it would be with amitripyline. The best pain killer I have used is Methadone, if the pain level doesn't drop taking amitripyline after 6 weeks will go back to Methadone 10mg twice a day. Don't waste your body on opiates IMO they are trash, ex OXY, VICODIN etc. Having PN IMO requires being a guinea pig since most doctors admit there is no cure if they tell you different run like hell. |
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