I am finally being tested this Friday ... My flare is on the taper and am wondering if this improvement will change the test results. I suppose I always have dysautonomia, it is just a matter of degree. He is having me taper some of my meds for the test.

I have small fiber neuropathy, dysautonomia and some AI disease (probably ankylosing spondylitis) for some members who do not know me.

Precisely which of the ANS tests are they going to do?

Sheltiemom

Hi Sheltiemom. How are you. It's Anita from SjS World. First post and just trying to navigate the hugeforum.

Do you have AN as well? What aspects?

I don't think it will effect your test results. It is good they are tapering meds, some meds really mess things up. I imagine you will have a tilt, a thermoregulatory sweat test, qsarts, valsalva and heart rate variability testing.

I haven't had any in years, but I KNOW my autonomic function has declined significantly.

Hope things go well for ya!!

Mere,

It all depends what things are "tapering" and what meds you will reduce as for what might be effected. By in large if the dysautonomia is there, it will show.

Cycleops,

It's Anita...I finally figured out how to navigate a bit. Drop me a message. I searched, but have no idea how to do so.

Hi En Bloc,

I am being tapered from Verapamil and Savella. The Verapamil for tachycardia and Savella for FMS. After the test he wants to change the Verapamil to a beta-blocker.

Thanks guys... The tests you mention sound about right. He explained that the tests will point to what part of the autonomic system is defunct. I don't seem to have fluctuations in my BP as in POTS, but I do have significant increases in my heart rate when standing. Along with the other lovely symptoms I have mentioned before. He may also do a test to check the fluid in my eyes as I have seem to have sicca syndrome, although, my sjogrens titers are negative.

He feels it is autoimmune, not sure what specifically, but autoimmune.

My bladder has also been acting up a bit more (retaining urine) and he has asked me to have a dynamic flow study as well. I feel fortunate to see him, Dr. Khurana, he is an 'expert' in autonomic neurology.

Are you continuing to feel better Cy?

Meredith

Hi, en bloc (Anita) - small world. How are you.

Yes, do have some ANS dysfunction; namely, overreaction to heat and underreaction to cold. Sweat production down somewhat in certain areas only. Symptoms have gotten better over time, but probably still photosensitive. When the sun returns in spring will have a better idea about this. Thankfully, the NLD SFN has improved greatly without Rx meds.

Sheltiemom