You may be rebounding from the verapamil, but, they will have to treat that.

Also, you have a low pulse pressure, like I do. Pretty typical for autonomic disease.

I was wondering if the Verapamil may take some time to work again. I woke up with a whopper of a migraine this morning and my BP is still very high on the diastolic reading (167/110, 168/127), pulse is also running a bit high at 97-98. I developed a headache during the tilt table test yesterday and then had bad nausea last night. The migraine is still raging since morning but I am tamping it down with Lortab.

What really worries me is my husband. He is really depressed about all of this. Nothing new, but more than usual. He comes with me to the appointments and then seems to develop a point of overload. Now do know, he is not an overemotional man. But this crap and my health, in general, has been a paramount issue in our marriage for many years. We've been married for over 29 years. I feel bad. It's his birthday on top of it.

This may be Savella induced. I see on your other post, you take this drug?

Sounds like when I get a massive sympathetic discharge. The only way it gets tamped down is a trip to the ER....or it rages for days.

As you go off meds there is a huge rebound.

I am so supersensitive to meds that I use pediatric doses of many of them.

My thought is they didn't give you enough time to adjust from tapering off meds.

Yes, MrsD, I do take Savella and that is one of the drugs I have just resumed taking.

Fluids and dilaudid. I can't take any anti-emetic. They are all either serotonergic (Zofran) or antidopaminergic such as Reglan. When the pain stops the puking stops.

For autonomic storms they recommend the morphine compounds and beta blockade....my pulse goes so low from the morphine that they don't do the beta blockade.

It is misery trying to explain this condition every time I go in....I don't always go in lest I be labelled a 'frequent flyer'....half the time I gut them out at home right now....really, I should go in.

Well, I have gutted-out this attack. On the couch again all day. Just feel wasted and sick, sleeping a lot. But at least my BP is stabilizing and my head is starting to feel better... I guess it's not going to crack open after all...

Glad to hear things are settling down for you, Mere. Hope you have a better week ahead.

I have to mention that my little cat, Mac, is a twin to the one in your profile picture. I haven't seen too many like him.

Thank you for your concern. Actually, it is not my cat, but looks like my little one, Riva. One of these days I will download a picture of Riva, or one of the other two - Ginger or Abby. I don't know what I would do without my girls...

I miss my kitties too. My last one died at age 17, just a few years ago. Hubby is very allergic, and at one time, I accumulated 5 of them, rescues from people....I was worried I would be a cat lady. I am 'down' to 3 huge dogs now. I miss the gentle cuddle of a kitty, and could do less with the enthusiastic pounce of a 100# labrador....but I love my pups too.