Small Fiber Sensory Polyneuropathy
So this is what the doctor came up with and told me to go home,
exercise and diet. He also gave me Lyrica. Anyone else have any
ideas on what else I can do to feel better??

Do you take B12? I have the same diagnosis, but do not, as a rule have pain. I am very grateful for that fact. Major pain anyways. I do have pain in my neck/shoulders, but it's doable. No meds as of yet.

I walk when the weather is good, walking makes me feel better. I try to concentrate on the things I can do and not those I can't. I would love to ride a bike, but I can't, so the walking makes me happy. I walk early in the day, often seeing deer, hearing the birds, watching dogs walking their owners and always with my music.

Feel better.

--what kind of testing was done to arrive at that diagnosis?

What kind of symptoms do you have, and where?

The most common cause of small-fiber sensory syndromes is impaired glucose tolerance/diabetes, but that only accounts for about thirty percent; many are autoimmune (from gluten intolerance, anti-nuclear-antibody vascular/connective tissue disorders, cross-reactivity from blood disorders, etc.), some are from toxins (particularly chemotherapy), and many are stubbornly idiopathic . . .

Your therapeutic approach would very much depend on what the etiology is, if one can be found, though certain supplements (B12, alpha or R-lipoic acid, magnesium, possibly B1 and acetyl-l-carnitine) are pretty much standard for any sort of small-fiber problem.

Yeah, very true. I didn't mention, my small fiber sensory polyneuropathy is from autoimmune gluten intolerance.

Thanks Glenn.

Welcome to NeuroTalk...

We really need to know more about you.

PN has many causes and what you can do for YOURSELF depends on what causes yours.

Have you had your B12 and Vit D measured by blood testing?

What drugs you take, how old you are, your gender, and when it all started (try to find the trigger--- exposure to drugs, solvents, or injuries).

People with PN may improve, but you must be a detective of sorts. One cannot sit back and expect doctors to fix it. Many times they don't.

How did you find out your neuropathy was autoimmune gluten intolerance? I've had "idiopathic" small nerve fiber PN for 11 years and am still trying to find the cause. Thanks!

That's what the neuro and I have gifured out..all's I can tell you. I have been gluten intolerant forever, been gluten free for 10 yrs. The neuropathy started before I was gluten free. This is the best reason my neuro can determine was the cause of my neuropathy...vitamin and mineral deficiencies. Also diagnosed with gluten ataxia and leaky gut.

It's the best answer we can find, especially since most of the time docs can't find a reason!