Hi,

Can understand your frustration that a cause for your PN hasn't been found. Mine began in January 2010 and also had the gazillion blood tests and spinal tap and skin punch biopsy. Dx'd with Sjogren's a month later - a known cause of small fiber and other neuropathies.

As there's but so much by way of script treatment that can be done and if these don't work - then what?

I began taking the supplements suggested here by MrsD last summer and by late fall/early winter 2010 began to notice improvement. At this point can honestly say I believe they've helped tremendously - not that the neuropathy vanished but there's no burning anymore, just skin discomfort. Compared to most of last year, it's like night and day. In my case, the Rx "silver bullets" were intolerable.

Botton line: Not keeping either the upcoming neuro or rheumatology appointments as nothing has changed except for the better and can't see a good enough reason to fork over the co-pays at this point.

Best wishes,

Sheltiemom