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Old 01-10-2011, 11:08 PM #1
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Karenswails Karenswails is offline
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Join Date: Dec 2010
Location: West Lafayette, Ohio
Posts: 25
10 yr Member
Karenswails Karenswails is offline
Junior Member
Karenswails's Avatar
 
Join Date: Dec 2010
Location: West Lafayette, Ohio
Posts: 25
10 yr Member
Crazy Small fiber neuropathy

I have, after 15 months of tests and pain, been diagnosed with idiopathic small fiber neuropathy. I am on Cymbalta, Neurotin, Amatriptyline and vicodin. Have been on this since October. New symptoms seem to be showing up daily. My ankles and feet are like balloons today, it hurts to bend my feet because the skin is so tight from being swollen. My vision is blurry (have always had perfect vision), my hair is falling out, my short-term memory is bad, I sweat profusely from my head, I am hot all the time, and the heartburn is awful! Considering using a cane when I leave the house, which is not often since I lost my job due to my symptoms a week before christmas. My dreams are so vivid, they are not nightmares, just dreams, therefore, my quality of sleep is affected. It is worse in my right arm than anywhere else, and of course I am right handed. I cannot stand for more than about 15 minutes it hurts the heels of my feet and my hips/lower back. The little things are the worst! Buttoning a shirt, picking up small objects like coins, holding cards, reading, eating, wiping after using the restroom. I do not seem to have the problem with hot or cold sensations I can feel that just fine. My doc at the cleveland clinic is very nice. I think it is either rheumatoid arthritis or lupus. My family dr thinks it is carpel tunnel and my neurologist just does not seem to care why I have it. I am getting tired of these two seeing who can pound their chest harder! There are days I can barely function, and I also have good days but they a far and few between. I have a wonderful supportive family and friends that wait on me hand and foot like the Queen that I am (haha) and my pets seem to be the best therapy for me, it is like they know I am not feeling well. I guess I am not asking anything, venting helps a little!
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