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#1 | ||
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Junior Member
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since this has all been happening to me. ie. burning feet and hands itching all over sensitivity on skin being put on gabapentin. this in the last 4 weeks. I have stopped going to the gym. I used to go everyday and work out atleast 1 hour if not two. I feel tired all the time from the gaba I guess have only been on it for 1 week. so my question. does anyone exciercise. does it help or make things worse.
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#2 | |||
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Member
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when I started taking Gabapentin I had no energy whatsoever, in fact I took 5 weeks off work and slept most of the time. I am now in year three with this med and am still tired but not as much - you will get some tolerance through time. I am still not at the gym stage but am ever hopeful. |
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#3 | ||
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Junior Member
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what symtoms did you have at first. How old are you if you dont mind me asking. I dont see many young people on this board and am wondering what the age group is. I am 38 and am just at my wits end with this and I have only had it for 4 weeks. I am on 200 gabapentin and am not feeling like it is working. I have been on it for 1 week. any advice would be great. tried to walk 2 miles today and at 1.5 my feet felt like lead weights. so I stopped at that. |
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#4 | ||
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Magnate
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Hi well I take a walk everyday. I am limited in what I can do and how fast. I lack range of motion. All the doctors I have seen for my condition I have rsd and pn said I must move or I will atrophy. When this condition first started I was in bed full days. When I went to Cleveland Clinic pain program the amount of pt was too much so I gradually started to walk. I think for me starting slow with any new activity is key. Otherwise I get hit with pain too hard and mentally things fall apart too.
I am 32 and was dx at 28. 200 of neurontin? Some people need 3500 to see a benefit. I am on this med as well though don't think it has helped. Did your rx doc set a plan to increase it? Also it often takes a combo of meds and a lot of trial and error. What type of doc is helping you? Hang in there |
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#5 | ||
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Junior Member
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#6 | |||
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Member
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I am 44 and have been taking Gabapentin for almost 3 years, I take 4x600mgs per day alongside 8 x Cocodamol(30/500 strength) and 20mg of Imipramine. The pain is still with me, some nights I don't sleep until 4am and then I am up for work at 7.30-I still work full time but it' s getting increasingly more difficult as well as coping with my two children(although my husband is fantastic but sshh dont tell him). I dont have aproper family life now as I just sleep and rest at weekends I also have Lignacaine Infusions every so often and they give me a few weeks respite at a time- I am trying to get this treatment more often but you need to be admitted to hospital and bed space is at a premium in my country. If I walk for any length of time at all I pay for it in the days to follow - and I can identify with the lead weight feeling. My advice would be wait until the testing is done and try to get referred to a Pain Management Specialist, also stay positive, once the pity party starts you will have lost - I just look around me and see there are others much worse off than me. Mrs D from this forum has given me some of the best advice of my life-Alkaseltzer helps with the burning ( I have been using this for two weeks and so far so good) and steep regularly in Epsom Salts(this gives some pain relief also). Good luck Last edited by malawigirl08; 04-15-2011 at 07:07 PM. Reason: tidy up text |
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"Thanks for this!" says: | mrsD (04-16-2011) |
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#7 | ||
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Member
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[QUOTE=Alkaseltzer helps with the burning ( I have been using this for two weeks and so far so good) and steep regularly in Epsom Salts(this gives some pain relief also).
Good luck[/QUOTE] I know I've read before about Mrs. D's post on Epsom Salts for some pain relief but could you please tell me exactly what you do? I've totally forgotten about it.....thanks! ![]() |
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#8 | |||
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"Thanks for this!" says: | Rosie33 (04-20-2011) |
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#9 | ||
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New Member
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Jolina, Thanks for asking your questions. I'm just starting down the treatment path myself. This is my experience so far; I'm 37 years old, your not alone.
I was just diagnosed with Small Fiber Neuropathy after 3 years of medical testing. We are now looking for a cause. I am up to 900mg of Gabapentin a day and have been on it for several months now. It wipes me out. From what I understand, someone please correct me if I am wrong, there is a very wide dosage range. I personally know someone that is on 4000MG a day and wouldn't be able to function without the medication. I am also on Tramadol that I take as needed. I am supposed to take 1 50mg Tramadol 4 times a day but I find that I usually take 2-3 of them at a time, only when I need it. As far as supplements go, I recently started taking 400mg of Alpha Lipoic Acid 2x a day on the recommendation of my neurologist. I take a mens multi-vitamin and take 6000mg of Fish oil. I'm just trying to find a way to survive at this point. I also have range of motion problems like Daniella. I was pretty much told that if I didn't keep moving, I'd become disabled and suffer far more than I am already. I have a very narrow exercise threshold, if I over do it, I'm done for a few days. My pain involves the whole body with my thighs are the most painful. It feels like a ran a Marathon yesterday, 24x7x365. I have problems with my feet, swelling if I'm on them to much but haven't really focused on finding relief for them. I wish you luck. I would ask the Dr to get a Skin Biopsy and Muscle Biopsy, right up front. It might save you years of testing and Dr's scratching their heads. I would look around for the Best hospital in the area, and use their doctors. I bounced around between specialist for years and have finally had a few breaks at the Cleveland Clinic. Best of Luck to you, Brian |
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"Thanks for this!" says: | malawigirl08 (04-16-2011) |
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#10 | |||
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Senior Member
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Brian, 3 years to find SFN? A "SKIN PUNCH BIOPSY" should have been in your first panel of tests and you would have known the results in about 6 weeks! (3 yrs ago) If your medical facility doesn't do it, there is a mail-order kit from Johns Hopkins - the guys who invented the test. Tramadol is designed to work not as an as-needed med but to be at a steady level of med in your system 24/7. Two or 3 at a time can lead to severe complications. I take Tramadol (Ultram) 100mg 3x day along with my Lyrica (used to be gabapentin til I switched) to help reduce symptoms & pain. What kind of doctor are you seeing? Seems to be a day late, on mostly everything. A PN specialist should be seen, not just any neurologist.
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Bob B |
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