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Old 04-15-2011, 05:37 AM #1
daniella daniella is offline
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daniella daniella is offline
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Hi well I take a walk everyday. I am limited in what I can do and how fast. I lack range of motion. All the doctors I have seen for my condition I have rsd and pn said I must move or I will atrophy. When this condition first started I was in bed full days. When I went to Cleveland Clinic pain program the amount of pt was too much so I gradually started to walk. I think for me starting slow with any new activity is key. Otherwise I get hit with pain too hard and mentally things fall apart too.
I am 32 and was dx at 28.
200 of neurontin? Some people need 3500 to see a benefit. I am on this med as well though don't think it has helped. Did your rx doc set a plan to increase it? Also it often takes a combo of meds and a lot of trial and error.
What type of doc is helping you?
Hang in there
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Old 04-15-2011, 11:01 AM #2
Jolina Jolina is offline
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Jolina Jolina is offline
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Quote:
Originally Posted by daniella View Post
Hi well I take a walk everyday. I am limited in what I can do and how fast. I lack range of motion. All the doctors I have seen for my condition I have rsd and pn said I must move or I will atrophy. When this condition first started I was in bed full days. When I went to Cleveland Clinic pain program the amount of pt was too much so I gradually started to walk. I think for me starting slow with any new activity is key. Otherwise I get hit with pain too hard and mentally things fall apart too.
I am 32 and was dx at 28.
200 of neurontin? Some people need 3500 to see a benefit. I am on this med as well though don't think it has helped. Did your rx doc set a plan to increase it? Also it often takes a combo of meds and a lot of trial and error.
What type of doc is helping you?
Hang in there
what is RDS?? until they actually diagnose me I dont think they want me on too much stuff. I go in for nerve testing next friday.
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