Ganglionitis or ganglioneuritis (as some call it) has a direct connection/relation to Sjogren's but is usually not confirmed until a post mortem exam of the ganglia.

However Hopkins has a new MRI protocol to look at the dorsal root ganglia, which has proved very helpful in my case (for answers). My neuro/rhuemy at JH is an academic and researcher (very few patients clinically). He also believes that once the ganglia is attacked, it's not limited to the dorsal root and would likely include the autonomic ganglia and brain...which is consist with the Sjogren's disease process. These are both right in line with my symptoms of severe autonomic dysfunction, temporal lobe dysfunction and cognitive difficulties. Therefore, I don't even think a DRG block would accomplish much because I think other ganglia are still involved.

Sadly, this MRI (w/DRG protocol) is not available in most (even large) institutions. You might want to check at the Cleveland Clinic though.

I am thinking of trying another 3 month course of IV steroids (1gm/day x 3-5 days each month). The idea being to assess my, ataxia, reflexes, proprioception, sensory, pain levels, etc (all problem areas), then do so again after the 3 months to assess any changes consistent with reduction of inflammation.