Hello! I'm new here, 53 and I also suffer from small fiber, autonomic and large fiber neuropathy. I fell ill when I was 24 and it took until yesterday to be diagnosed. Doctors didn't believe my symptoms so no one did the testing I needed. Almost everyone said I was a psych case, but testing finally proved otherwise. I've been practically living on the sofa for the past 25 years and letting life slip through my fingers. Alive, but not living. My neuro prescribed Neurontin, Mestinon, Cymbalta and Alpha-Lipoic acid yesterday. She said she didn't know the cause and probably wouldn't ever. I find this hard to swallow, as I had a strep infection immediately before I became ill.

I thought I saw some of you are receiving plasmapharesis or IVIG. How do docs know what causes the PN and what to treat you with?

Thanks much.