And--true to those of us who have celiac disease, gluten intolerance, and gluten sensitivity, have you thought about this approach? Many gluten intolerant people only have neurological symptoms and when they come on, they come on strong. Also, many who are gluten intolerant will find great relief of the neuropathy symptoms after being gluten free. It's worth checking out. Gluten (wheat, rye, and barley) can cause so many problems for so many people. Check out the gluten sensitive forum in this site.

Deb

My partner was with me and did try to speak up but to little avail. In the UK it if difficult to get to see a specialist of your choice unless your GP is prepared to make a referral to one , otherwise you just get whoever is the doctor/consultant at your local hospital, that is the way the National Health Service (NHS) works here. I have found the name of a specialist in PN and he is not far away from where I live. I will ask my GP to refer me as a private patient if I don't get something positive from the neuro I am seeing in the NHS, but an worried about doing this in case he brands me neurotic.

I have thought about the intolerance issue and I am looking in to where i can et some tests for this done. Truth is I eat very little which has a lot of gluten, I am a vegiaterain and generally eat well, organic stuff and a good home cooked varied diet. I aslo take suppliments B comlex, omiga oil etc.

What a position to be in!