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Old 03-11-2007, 08:31 PM #11
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
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15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default I agree with Liza, Kmeb, Glenn and Joe...

The guy's [surgeon that is..] gotta get and keep in 'practice' after all! That's why I suggested you read those references and all the back issues available on-line of IGLiving... That was exactly MY instinct reaction when the biopsy issue was proposed to me.....exactly one month before I'd found all you great folks! It was a good thing to know my instinct wasn't stupid?

Melody, please when you say 'postings', I hope you will share them with Alan ONLYand not Dr Fred and Goldfarb? I mean, some docs would conceivably conclude that we are practicing medicine here???? Sharing w/docs, while it mite be a good thing sometimes, well, could get legal issues in play and we wouldn't be able to use this and other resources! Folks, you gave me a super good chuckle w/those comments!

. This mite give you a hint that they don't give out this stuff without a double, triple, and, at times quad check! How often Alan might get it in the future depends on two things: 1-how MUCH relief he gets and 2- what his post-infusion blood work numbers say...He will be getting a lot of blood work in the next few weeks+ doc appts. You literally have to be certified, pedigreed and bonded before you get the stuff!

IF he'd not been approved for IVIG, he would NOT have gotten any or the plug would have been pulled rite away. Surgery is one way to assure the 'cash cow [patient]' is certified, Second opinions from other top neuro docs in NYC is cheaper and less invasive than surgery...That's what I'd done! I am truly grateful I did!

Hugs to you two - j

Last edited by Chemar; 10-31-2007 at 11:39 AM. Reason: insurance info removed at Melody's request
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