Yeah....... whatever HE said !!
(thanks, Glenn )

I think I'm kinda glad I started this thread

regarding PN i have learnt everything from the internet. all of the seven neurologists i have seen in hong kong have been totally incompetent. the first one didn't recommend a blood test. the second one did, but did not test for B12. none of them mentioned blood sugar or an OGTT. i could go on but i won't as i now know that my experience is not uncommon. the most useful resource i have found has been this site. so thanks to everyone who contributes. and remember to be tolerant. it can be quite a frightening and confusing experience at the beginning, and it's hard to know who to listen to.

It's frustrating, though, when you try all, or at least most of the things that are suggested, and none of them seem to help. That can make you feel kind of different, especially when the suggestions seem to help most other people. But I'm glad to have the support from people who understand what having PN is like.

thats true. for 2 years i have tried everything. i have kept logs of supplements, activities, and diet, and still have no idea what makes some days worse than others.


i am usually at the same pain level each morning, and sometimes, like today, for no apparent reason the pain just slowly grows to an all encompassing crescendo, and all i can do is lay perfectly still like a rock for a couple of hours and focus on nothing but breathing until it subsides. sometimes it stops and sometimes it doesn't. it reaches an unbearable level about two or three times a week.

and then i am back to normal the next day. starting in the morning with mild pain, never knowing what will happen through the day.