Hi

It's me again! I am so upset and confused.
My symptoms don't make any sense. Yes they fit neuropathy but 8 Emg/ncv clean. Skin biopsy clean. Muscle biopsy clean.

What baffles me is how I have this all over. I understand the tingling sharp stabbing pins and needles.

I mean the cramping/ spasms (tight pulling)
My muscles from head to toe face to feet are in constant state of tightness. It dose t feel like a regular tight. It's a pulsating pull pull pull.
Similar to what tmj or teigeminal neuralgia patients describe.
In this tightness I get constant barrages of smll twinge cramps all over and in multiple places at the same time.
Literally is so painfull as if the muscle is pulling of the bone.
It squeezes super tight and spasms tigt let's go and then on.
Or like in face tight all day long!!!
I carried bags of grocery and when I put them down my finger and arm goes nuts twitching as I made it work thru the tightness

As I walk and arms fling back and forth makes the tightness pull worse.
Same in legs and face. More I talk worse it gets.

So in neuropathy if my nerves done to show signs of damage the is it neuropathy after 13 yrs. No loss of sensation.

Doctor said possible peripheral nerve hyperexcitability syndrom
But Emg is clean.

I know it's my nerve as I can feel the nerve activity and that causes this

Is it all muscle putting pressure on the nerves and on turn causing all neuropathy sx and twitching and stiffness.

Been take cal and mag and Epsom salt baths daily.

I have researched and seen people with similar neuropathy but not this severe muscle spasms and tightness all over.
I have seen people say it's in their face not all body.
I go to open the fridge and breast muscle almost crps! It's little movement too

I don't know what's wrong with my body. I am so depressed with this.
And feel so alone.
My throat gets so tight that when I swallow the front bones click so hard.
It's like all muscle are being rung!
When I cry or anxious the tight pulses get worse.

I don't get this.
Neuromuscular disease I don't know

I have seen people with stiff person syndrome describe like this and in face but I have had five times anti gads checks and Emg is so quite!!



I dont know any more