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Old 07-21-2011, 03:51 AM #1
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I am not an expert so I may be wrong but PN is damage to the nerves and is usally from a condition,injury,illness etc. Sometimes like for myself the why is unknown. You can have numbness,pain,burning,tingles etc. For fibromyalgia it is wide spread joint and muscle pain. I think the cause can be unknown.Now for me though I don't have fibro I do have a lot of joint and muscle pain and no one can touch me but I think that is from my PN and RSD.
Have you seen a neurologist? How did they dx you with PN? Do they know why you have PN? Have you had bloodwork
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Old 07-21-2011, 07:17 AM #2
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I am not an expert so I may be wrong but PN is damage to the nerves and is usally from a condition,injury,illness etc. Sometimes like for myself the why is unknown. You can have numbness,pain,burning,tingles etc. For fibromyalgia it is wide spread joint and muscle pain. I think the cause can be unknown.Now for me though I don't have fibro I do have a lot of joint and muscle pain and no one can touch me but I think that is from my PN and RSD.
Have you seen a neurologist? How did they dx you with PN? Do they know why you have PN? Have you had bloodwork
I have not seen neurologist.

I think the widespread pain criteria is why rheumy MD said no to fibromyalgia. I do have pain in various locations of body, but not all at one time.

I don't know why I have nerve pain. I think the diagnosis was based on tingling, numbness, and electric shock type of pain.
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Old 07-21-2011, 11:01 AM #3
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With fibro you must react to 11 of 18 specfic pressure points in your body. I had 16. Usually you feel worse in the morning. I feel like I've been run over by a truck. A good rhumy should be able to do this. There isn't, as yet, a blood test or x-Ray to determine fibro. There is some info coming out with MRIs. There are over 100 symptoms for fibro, sometimes it has no known cause. I do have PN in addition, it was confirmed by EMG. So you could have both. I also have OA
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Old 07-23-2011, 05:44 AM #4
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I have both also. I often wonder if fibro isn't related to neuropathy also. Sometimes it is difficult to know which you are suffering from, or maybe they feed off of each other. Fibro involves nerves also, I believe. The nerves, which are located throughout your body, are the sites where you first receive impulses and also the site where you start to process and transmit them. In fact, nerves are the starting point of your pain. So how can we tell the difference. I was diagnosed with my neuropathy first about 6 yrs ago, my fibro this last April.
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Old 07-23-2011, 05:49 AM #5
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My understanding of this from the recent medical seminars I attended is that Fibro is a central pain disorder.

It can be triggered by anything that sets up a pain sequence.
Listed were
Trauma --like a car accident.
Arthritis
PN
Infections
Vaccines

We were told that trigger point diagnosis is no longer valid. And that Fibro was basically like having a radio on full blast with no volume control. Eventually small signals from the periphery get magnified in the brain and read as a higher pain level than really exists.

Also that it runs in families, and that an 8 fold occurance is possible if family members have it.

So yes, PN and Fibro can exist together. The PN would be the trigger for the Fibro.

Research is still ongoing about it.
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Old 07-23-2011, 04:32 PM #6
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I don't know much about PN, but lots about fibro.

As it is I am not positive if I have Neuropathy, but its been discussed by
more than one of my doctors. But I'm treated for fibro.

Donna
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Old 07-23-2011, 06:10 PM #7
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Quote:
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We were told that trigger point diagnosis is no longer valid. And that Fibro was basically like having a radio on full blast with no volume control. Eventually small signals from the periphery get magnified in the brain and read as a higher pain level than really exists.

Also that it runs in families, and that an 8 fold occurance is possible if family members have it.

So yes, PN and Fibro can exist together. The PN would be the trigger for the Fibro.
Makes perfect sense to me. When I read you must have 11 of the 18 points, I know I didn't, at least I didn't think so.

My mom has fibro as does both of her sisters. So, I guess I come by it naturally!Also makes sense that the neuropathy may have triggered it, who knows!
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Old 08-01-2011, 10:56 PM #8
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Quote:
Originally Posted by mrsD View Post
My understanding of this from the recent medical seminars I attended is that Fibro is a central pain disorder.

It can be triggered by anything that sets up a pain sequence.
Listed were
Trauma --like a car accident.
Arthritis
PN
Infections
Vaccines

We were told that trigger point diagnosis is no longer valid. And that Fibro was basically like having a radio on full blast with no volume control. Eventually small signals from the periphery get magnified in the brain and read as a higher pain level than really exists.

Also that it runs in families, and that an 8 fold occurance is possible if family members have it.

So yes, PN and Fibro can exist together. The PN would be the trigger for the Fibro.

Research is still ongoing about it.
Thats interesting , mrsD because my pn came to fore round the same period I started working on a do extensive prioprioception work to help my HMS , and all round chorinc connective tissue issues.

In fact ive probably taken that (without boosting )to level way beyond most are capable of given what i can do / have to do just to get by.

It makes me wonder then, if theres way of measuring the proprioceptiors in the periphery ( im assuming FMRI is one way ) that might show any relationship between the two ?

http://en.wikipedia.org/wiki/Proprioception



Basis of proprioceptive sense

The initiation of proprioception is the activation of a proprioreceptor in the periphery.[10] The proprioceptive sense is believed to be composed of information from sensory neurons located in the inner ear (motion and orientation) and in the stretch receptors located in the muscles and the joint-supporting ligaments (stance). There are specific nerve receptors for this form of perception termed "proprioreceptors," just as there are specific receptors for pressure, light, temperature, sound, and other sensory experiences. Proprioreceptors are sometimes known as adequate stimuli receptors.

Although it was known that finger kinesthesia relies on skin sensation, recent research has found that kinesthesia-based haptic perception ( This is basically what i used to help myself ) relies strongly on the forces experienced during touch.[11] This research allows the creation of "virtual", illusory haptic shapes with different perceived qualities.[12]
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Old 08-05-2011, 08:44 PM #9
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Quote:
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Also that it runs in families, and that an 8 fold occurance is possible if family members have it.

So yes, PN and Fibro can exist together. The PN would be the trigger for the Fibro. Research is still ongoing about it.
Hi MrsD,

I'd really like to call in question the FM being hereditary. I have FM and there is no one in my family that had it before me. I was involved in a car accident and it started not long after that. In fact I had the symptoms right after the accident but was told it was shock; FM back then though was not even fully accepted as a disorder.

So I believe I contracted it from the accident, not from a hereditary source
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