I really believe the words "FLUKE" or "A FLUKE OF NATURE", are listed in the dictionary of medical terms". More than one doctor has relied on those words to describe some of my maladies which makes it hard for me to argue or ask more questions (a good way to shut us up). It's a wonder they don't say, "It's an act of God", and be done with it.

My Vit D level was low, but for over a year it's been much better..this last blood work it was 70. My neuro told me to continue with the dose I take and to not take a lower dose in the summer time.

Rosie, I do not think we are flukes of nature. We are a product of the things that go wrong in our world. We just happen to be more sensitive to things than some people.

I just read this morning that celiacs whom went years without knowing what was wrong, have the chance of developing several autoimmune diseases. How sad is that? Always something to brighten my day.

I'm thankful that my fibro seems pretty stable for now and I hope it stays that way!

For myself and many here I don't feel it is a fluke either. Just too much odd stuff that pre condition did not happen. I feel if doctors would make more connections between problems happening it would really help. The problem is that each specialty does not like to go outside that.

Januarybabe,

You are one of the very few people at this forum that have posted about having allodynia (unless I've missed seeing others). Is yours due to the texture of certain fabrics, the pressure of clothing/bedding?

I still have some residual to denim or coarse fabrics but not to a lot of my other clothes anymore. I wear a pettileg slip under the linen crop pants and Land's End silk longjohns in cold weather under the corduroys, denim and other pants/slacks.

Thanks,

Sheltiemom18

[QUOTE=Sheltiemom18;791707]Januarybabe,

You are one of the very few people at this forum that have posted about having allodynia (unless I've missed seeing others). Is yours due to the texture of certain fabrics, the pressure of clothing/bedding?


I seem to have all kinds of allodynia. My waist feel like sunburn and pants rub the "sunburn". The texture of clothing bothers me for things like denim. I have a system of wearing cotton dresses. In colder months I wear boots with dresses. When it is very cold I find some nylon tights that are somewhat tolerable and wear these under dresses.

Sometime my arm or leg feels warm. That is one of the few "good" feelings I get.

Unexpected things happen. I have gotten electric shocks from the metal push carts at Walmart. I now use a hand basket or go to Target that has plastic carts.

The shower spray sometimes causes stinging pain.

Can you explain to me what getting shocks has to do with all this? I get shocks all the time and I hate it. I had decided I must be an electric conductor of some sort!

--a lot of us, over the years and many posts, have described symptoms of allodynia (pain from non-painful stimuli).

I certainly have experienced this during the most acute phases of my neuropathy attack., and still tend to get it in "flares" from time to time.

It is not uncommon in those with small-fiber involvement, in particular.

I found this in About.com this am:
I think I fall under the mechanical allodynia. I often call myself "the princess and the pea"...I can't stand things touching me sometimes, not all the time. Some days I can wear a necklace, other days I can't stand it touching me, or it weighs too much...can't stand sleeves touching my elbows, hate pants touching my legs, shoes can't be tight in any way.

Then I found this website about headaches and allodynia...very interesting. I hope it's ok if I post the link, if not, remove it:
http://www.achenet.org/education/pat...utshouldnt.asp

While I do not have the extensive sensory involvement most of you have, I do get odd sensations like the sheets feel damp when they are not or that rain drops are falling on my arm when its not raining. Forget using a fan in this heat, the breeze irritates my skin. Can't wear a bra, waistbands are painful even tho' not tight, have not found a shoe that does not cause problems. I shaved my maltie a few days ago with an electric shaver and it started my hands to fasciulate so fast, they appear to be vibrating and they are still doing it intermittantly. I used to enjoy a nice hot shower, well those days are gone. Water hitting my skin is unpleasant at any temperature.

I think the electric shock might have to do with vibrational allodynia. The vibrations from the grocery carts get my hands to buzzing.