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Old 07-24-2011, 06:39 AM #1
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Default It would also be a good idea--

--for an MRI to be done of the cervical spine, if one has not been--problems there can be reflected to any level from the neck to the feet, depending on what might be compressed. (Of course, there's also the possibility that your spine or nerve roots are not involved at all, and this is a true peripheral problem.)
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Old 07-24-2011, 12:33 PM #2
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--for an MRI to be done of the cervical spine, if one has not been--problems there can be reflected to any level from the neck to the feet, depending on what might be compressed. (Of course, there's also the possibility that your spine or nerve roots are not involved at all, and this is a true peripheral problem.)
What does it mean "a true peripheral problem?" The only MRI of my back has been of the lower lumbar. I am to the point of not wanting to spend anymore money on tests! What's the point, it seems all treatment is the same. However, deep down it is frustrating not knowing the cause of this life changing "disease."
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Old 07-24-2011, 10:13 PM #3
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Did you have an injury or accident and is that why you have a bulging disc?
Are they going to put you on meds for the arthritis?

I am diagnosticly tested out for now so the why behind my conditions is unknown. I do feel though it is important to rule out all possible conditions because some that are caught early can be treated better. Also from what I have been told that if you can find the reason behind all this it is easier to treat. Now for me I have RSD and PN but since I don't know the cause it is about pain control and treatments. So if you get to the point where you are dx tested out you may want to look into pain doctor etc.
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Old 07-25-2011, 06:51 AM #4
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Default Just that--

--one of the problems with neurological symptoms is that the exact same subjective impression of symptoms can ultimately stem from problems with the spine or nerve roots, or from problems with the peripheral nerves--those outside the central nervous system (brain and spinal cord)--or even both simultaneously. Therefore, unless there's obvious evidence--spinal compromise due to trauma, for example--it often takes a considerable amount of testing to find a cause, if one can indeed be found. (It's very much a process of elimination/exclusion.)

A lot of us like to use the Liza Jane spreadhseets, which are about as comprehensive a listing of testing for neurological symptoms, based on type, that can be devised (and the spreadsheets are also good for tracking results over time, to look for patterns):

www.lizajane.org
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Old 07-25-2011, 06:56 PM #5
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--one of the problems with neurological symptoms is that the exact same subjective impression of symptoms can ultimately stem from problems with the spine or nerve roots, or from problems with the peripheral nerves--those outside the central nervous system (brain and spinal cord)--or even both simultaneously. Therefore, unless there's obvious evidence--spinal compromise due to trauma, for example--it often takes a considerable amount of testing to find a cause, if one can indeed be found. (It's very much a process of elimination/exclusion.)

A lot of us like to use the Liza Jane spreadhseets, which are about as comprehensive a listing of testing for neurological symptoms, based on type, that can be devised (and the spreadsheets are also good for tracking results over time, to look for patterns):

www.lizajane.org
Glenna, thank you. I actually found the Liza Jane spreadsheets on this site before I went for my first neuro appt and took them with me. Another helpful tip I learned from this site was to ask for a copy of all tests results before leaving the dr. office. I keep everything in a notebook. The people on this site are absolutely wonderful!
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Old 07-26-2011, 09:56 PM #6
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HI Sheila, I too have had prickles in my face. It is very scary and annoying. You are not alone. I just had an MRI of my brain also. I don't know the results yet either. I am a teacher also. I am still nervous about going back. Are you still planning on going back? Best of luck sheila!! Danielle
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Old 08-01-2011, 10:14 AM #7
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HI Sheila, I too have had prickles in my face. It is very scary and annoying. You are not alone. I just had an MRI of my brain also. I don't know the results yet either. I am a teacher also. I am still nervous about going back. Are you still planning on going back? Best of luck sheila!! Danielle
Danielle, yes I am returning, but I am leaving the classroom for the library. I'm really excited about the change! How my body reacts to the changes is yet to be seen. Our professional development begins tomorrow and the students begin next Monday.
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Old 08-09-2011, 02:57 PM #8
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HI Sheila, I too have had prickles in my face. It is very scary and annoying. You are not alone. I just had an MRI of my brain also. I don't know the results yet either. I am a teacher also. I am still nervous about going back. Are you still planning on going back? Best of luck sheila!! Danielle
I get some of these feelings too. I also get the stinging pain in various portions of my body.

I am on 1800 mg gabapentin per day.

The only thing I found helpful other than the pain pills is applying ice to face. I have a frozen water bottle and I apply it to areas of face and head that feel funny.
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Old 07-25-2011, 06:49 PM #9
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Did you have an injury or accident and is that why you have a bulging disc?
Are they going to put you on meds for the arthritis?

I am diagnosticly tested out for now so the why behind my conditions is unknown. I do feel though it is important to rule out all possible conditions because some that are caught early can be treated better. Also from what I have been told that if you can find the reason behind all this it is easier to treat. Now for me I have RSD and PN but since I don't know the cause it is about pain control and treatments. So if you get to the point where you are dx tested out you may want to look into pain doctor etc.
No, Daniella, I've had no injury or accident to my back. No clue where all that came from either. As far as the arthritis, my ortho is very conservative in her treatment. The only medication she is recommending at this time is glucosamine chondrontin (sp??) and orthotics. I'm ok with that because honestly my ankles and feet only hurt when I walk..HAHA. If I step just right I feel as if a bone is breaking in that area. I literally see stars but it goes away momentarily. Just hoping it doesn't happen in both feet at the same time because I know I will go to the floor!

I am very fortunate that at this point in time I am not experiencing much pain with the PN. So I guess the Lyrica is working. My toes and fingers feel cold and numb mostly...like frost bite might feel. But these stinging, pinching things that happen all over my body (face, neck, legs, arms, torso) are quite annoying. The weirdest thing is the numb feeling I get around my eyes and eyelids. I get the results of the MRI of my head tomorrow!

Thank you for listening, my husband isn't understanding. He wants the person he married 3 years ago back. I can't blame him because I want her back too, but I didn't ask for this!
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