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-   -   I was on a Neuropathy Facebook page (https://www.neurotalk.org/peripheral-neuropathy/155173-neuropathy-facebook-page.html)

Marlene 08-12-2011 08:43 AM

There's no depth on FB. I too have looked at other sites concerning health and I find them lacking on many levels.

Dr. Smith 08-12-2011 09:26 AM

Quote:

Originally Posted by MelodyL (Post 795012)
Well, I just got a good blasting by some guy who said "I would appreciate it if you would NOT give people false hope, blah blah, and stop pushing YOUR supplement".

They say there's no fanatic like a convert, and I guess that's true. There are folks here who have their "favorite" meds/supplements/causes etc. (and I'm no different). I've been taking Methyl B-12 for months, and I can't say I've noticed any difference. OTOH, I started on 100 mg. R-Lipoic Acid, and within 48 hrs, folks, I'M A BELIEVER!!! I've also questioned some things and been called on the carpet for that. (Where's the shrugging emoticon?)

On the flipside, I s'poze there's a lot of sour grapes from folks who're frustrated by things that are working for others, but not for them.

I'd wax some more philosophicals, but I'm under the (time) gun for an appt. today....

Doc

nide44 08-12-2011 10:11 AM

Facebook? Two - Faced - no thanks.
Never have - don't belong-never will.
I don't 'TWITTER' either. Same thing.
These have been touted as THE social networking
must have, must be
.
I prefer to stay under the radar in most instances.
Not completely, because I'm on theses pages, but not
in a place I consider to be too much like a crowded elevator
or a squeezed in, rock concert, melee.
I'm more sedate than that.

echoes long ago 08-12-2011 01:02 PM

some of those face book sites might be set up by those who have a particular product or service that they might wish to steer people to. For example laser light therapy, vitamins, nerve release surgery etc. along you come with something effective and cheap and just doesnt fit into their agenda. other sites might just be suffering from the page owner or moderator having small fish in a tiny pond syndrome.

MelodyL 08-12-2011 02:48 PM

Quote:

Originally Posted by echoes long ago (Post 795097)
some of those face book sites might be set up by those who have a particular product or service that they might wish to steer people to. For example laser light therapy, vitamins, nerve release surgery etc. along you come with something effective and cheap and just doesnt fit into their agenda. other sites might just be suffering from the page owner or moderator having small fish in a tiny pond syndrome.

Oh, I just had to write and tell you what happened one hour ago. We were coming back from Dr. Fred and they took more blood.

As we are on our way home, I am walking beside Alan (who uses one of those seated walker things) and he said "I saw someone sitting in one of these walkers and someone was actually wheeling them". Of course, (stupid me) said "oh really?, why not try it"??

So he's facing me, sitting in the walker, I start wheeling him, it's working out just fine and BOOM, in one second flat, the walker gets caught on some crack in the sidewalk, Alan goes flying, I go flying on top of Alan and we're laying there and he's moaning and there's a guy standing right next to us, who watched the whole thing unfold and just looked at me, and walked away.

HE WALKED AWAY and walked into a store.

I got up, and 3 people rushed over and helped me get Alan and made sure all was okay.

We got home, I put Tiger Balm all over his back and shoulder blades and he seems to be just fine.

But the guy WALKED AWAY.

How can someone just do that?

OMG!!!

Melody

echoes long ago 08-12-2011 03:15 PM

it doesnt surprise me. one time i was walking and didnt see a pothole and twisted and broke my ankle. so im laying there for a few minutes, then i had to hobble home over a mile away on a broken ankle. do you think anyone stopped and even offered to call someone for me...no.....but i still help people when i can and have saved a few with cpr that i ran accross in the street.

on an off topic note i just found out something is seriously wrong with my muscle enzymes numbers which were tested because my legs were locking up. of course they cant tell me over the phone and wont give me a copy until i see the doctor on wednesday. i looked up what it might mean on line and i dont think i should have.....ha!

gardening1 08-12-2011 03:31 PM

Hi,
I am the admin. of Support for Neuropathy and I did not tell you that I might delete you for talking about it. What I was concerned about was that you were pushing it on people. You told someone to go get it immediately. People always need to contact their doctor before taking any supplements.

*edit*

Quote:

Originally Posted by MelodyL (Post 795012)
Well, I just got blasted again. I went to a completely different Neuropathy Page on FB. I posted a message saying how Methyl B-12 worked for ME. I was very careful. First I said "google Methyl B-12 and neuropathy", read the info and decide if you might be interested. I then explained my experience with it.

Well, I just got a good blasting by some guy who said "I would appreciate it if you would NOT give people false hope, blah blah, and stop pushing YOUR supplement".

You don't want to know what I told him.

And even if I started my own group, this guy would probably come along and post the same message.

You can't win. I now know this.

I'll stop opening my mouth.

But, on another note, two people did thank me, and went to Puritans and got the Methyl B-12.

Hope it helps THEM.!!

lol

Melody


Kitt 08-12-2011 03:43 PM

Quote:

Originally Posted by MelodyL (Post 795130)
Oh, I just had to write and tell you what happened one hour ago. We were coming back from Dr. Fred and they took more blood.

As we are on our way home, I am walking beside Alan (who uses one of those seated walker things) and he said "I saw someone sitting in one of these walkers and someone was actually wheeling them". Of course, (stupid me) said "oh really?, why not try it"??

So he's facing me, sitting in the walker, I start wheeling him, it's working out just fine and BOOM, in one second flat, the walker gets caught on some crack in the sidewalk, Alan goes flying, I go flying on top of Alan and we're laying there and he's moaning and there's a guy standing right next to us, who watched the whole thing unfold and just looked at me, and walked away.

HE WALKED AWAY and walked into a store.

I got up, and 3 people rushed over and helped me get Alan and made sure all was okay.

We got home, I put Tiger Balm all over his back and shoulder blades and he seems to be just fine.

But the guy WALKED AWAY.

How can someone just do that?

OMG!!!

Melody

The four wheeled walkers with a seat are called rollators. They specifically tell you not to sit in them and be wheeled by someone else because the front wheels are not set up to do that and they can and do break.

I am sorry to hear about your troubles and it is too bad that people just do not want to help. But remember, the rollators are not to be sat on and pushed by another person. They only are an aid to walk and to sit if needed.

However, if you have a rollator/transport one, that is different and it is made for a person to sit and be pushed or to push it yourself and sit when you want. That type has a place to put your feet on so that they are not hanging. Just trying to help.

MelodyL 08-12-2011 03:49 PM

Quote:

Originally Posted by Kitt (Post 795146)
The four wheeled walkers with a seat are called rollators. They specifically tell you not to sit in them and be wheeled by someone else because the front wheels are not set up to do that and they can and do break.

I am sorry to hear about your troubles and it is too bad that people just do not want to help. But remember, the rollators are not to be sat on and pushed by another person. They only are an aid to walk and to sit if needed. Just trying to help.

I can guarantee you that this will NEVER happen again. I guess if Alan weighed 120 lbs, that might not have happened.

Oh brother, did we get lucky or what? He could have broken his neck. Or mine!!

Never again.

Melody

MelodyL 08-12-2011 04:00 PM

Quote:

Originally Posted by echoes long ago (Post 795135)
it doesnt surprise me. one time i was walking and didnt see a pothole and twisted and broke my ankle. so im laying there for a few minutes, then i had to hobble home over a mile away on a broken ankle. do you think anyone stopped and even offered to call someone for me...no.....but i still help people when i can and have saved a few with cpr that i ran accross in the street.

on an off topic note i just found out something is seriously wrong with my muscle enzymes numbers which were tested because my legs were locking up. of course they cant tell me over the phone and wont give me a copy until i see the doctor on wednesday. i looked up what it might mean on line and i dont think i should have.....ha!

Well, I certainly hope you clear up this muscle enzyme thing. Good lord, we now have to worry about our muscle enzyme.

On a funny note (not really funny but I think it's humerous), we just had returned from seeing Alan's doctor (right before we fell) and Alan got new blood work done. I got the report from his last blood test (Alan had prostatitis) and had elevated this and that, I gather because he had an infection that all these results get elevated??

Who knows. He's fine now and we'll get the results of this latest blood work, well, we'll fine out on Tuesday.

It makes one NOT want to go for blood tests.

lol
Melody


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