Melody, I know how certain support groups on FB can be troublesome. But I am going to have to go with what gardening1 said. So, I will just give you an example. I belonged to the Occipital Neuralgia support group on there at one time. But the opposite problem seemed to hold true. Instead of looking for or at the causes a LOT of them were touting Vitamins and what not. And, well, some of the folks lived in other countries so they issues with medical care anyway. Anyway, I was made an Admin at one point or rather the owner asked to be one. The problem is as Gardening1 stated, a lot of these holistic or natural remedies CAN interfere with medications that people take. I am not saying Vitamin B is one of them...just saying that sometimes there is a lot of bad information and/or someone might run out and grab herbs or what not without really doing the research and/or checking with their doctor first. In any case, I asked to be removed from being an Admin; sometimes people just don't want to listen. And I also think, at times, it is just a huge vent session, which is okay I guess. Anyway, there is a small fiber neuropathy group there that is pretty good. Don't sweat it though...there are some good people in various groups. :)

just here briefly on hubby's computer.

I have to comment about FB and other social media.

Mel, you have to remember that people don't really take to
new ideas...even tho this is not a "new Idea" to us.

I post here with documentation so that anyone who cares to read and listen may profit if they choose. But no one can force anyone to do anything... esp on the internet.

I personally have had great personal success on the internet for myself, so I tend to be positive about it. But the sad fact remains that many people still defer to their doctors who may or may not be up to date on all the research from 1999 on.
Here on NT...we have active Google strings bringing people here...if they choose to that is. I tend to just do my thing, find the data, and hope people will read and understand it.
It is free after all... perhaps if I charged doctor's rates, it will lend credence... but certainly being free of charge is not going to encourage trust in others. That is why I put LINKS to the proof. Not all neuropathies will respond the B12 or any other thing. There are so many causes, they would have to be examined carefully.

So That is why you won't find ME on FB. If people are earnest in finding other points of view they will find us here from Google links.

Great to see you mrsD :) and hope you are having a wonderful vacation :hug:

I am going to have to lock the thread (lol nothing you said mrsD ;) ) and really nothing anyone else has specifically said.....
but
in the past we have closed threads that bring problems being encountered at other forums over here.
We just don't want to have the peace here disrupted by whatever has happened elsewhere :)



sooooo
what happens on facebook...stays on facebook! and onward and forward here :cool: