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Old 04-03-2014, 08:26 AM #1
ChaucerFan ChaucerFan is offline
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Join Date: Jul 2013
Location: Eastern Pennsylvania
Posts: 80
10 yr Member
ChaucerFan ChaucerFan is offline
Junior Member
 
Join Date: Jul 2013
Location: Eastern Pennsylvania
Posts: 80
10 yr Member
Default Sounds too familiar

Quote:
Originally Posted by norahs View Post
Until I was diagnosed I had never heard of "erthromelalgia" and because it is pretty rare there are few with it. Although I wouldn't wish this on anyone it would mean a lot to me to have someone to talk to that shares my situation and pain.

I also have PN, Raynaud's which my doctor believes are a result of the EM. There are other sites with EM sufferers but I like this site so much just thought I would check with you all.

Thank you.
Thank you, Norah, for your posting. I appreciate your mixed feelings about sharing this diagnosis. After reading this thread and doing some Internet searching, I may now know why my PN seems to have led to swelling, burning, and redness, along with Raynaud's-like symptoms. (One foot will be somewhat purple and the other lobster red; sometimes one foot even has both colors.) I was already dreading the spring and summer weather that everyone else around me is eager for. Now maybe I know why.

Two questions for those of you with experience with EM. How is it diagnosed? And what KIND of specialist would a person look for, to deal with it?

I'm sharing the hopes of others that Stacey is better today. Maybe the reason she hasn't updated us is that she's gone to the ER. And maybe she'll get help there. She was more on my mind last night than my own pain.
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