Reply
 
Thread Tools Display Modes
Old 09-05-2011, 06:34 PM #1
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

Quote:
Originally Posted by Buttercup40 View Post

Hope this helps.
Can I please ask, is it normal to get this very painful electric shocks with PN?
Thank you once again
Buttercup x
I have had the painful electric shocks quite often, more often the milder ones. Has he had an EMG lately? My electrical shocks are horrible for the first few weeks after an EMG. It seems to stir things up.
They did settle down somewhat when I went up to 1800 mg of neurontin.
I have hereditary neuropathy, CMT.
Susanne C. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (09-06-2011)
Old 09-05-2011, 06:57 PM #2
malawigirl08's Avatar
malawigirl08 malawigirl08 is offline
Member
 
Join Date: Mar 2010
Location: Scotland
Posts: 315
15 yr Member
malawigirl08 malawigirl08 is offline
Member
malawigirl08's Avatar
 
Join Date: Mar 2010
Location: Scotland
Posts: 315
15 yr Member
Default

Quote:
Originally Posted by Susanne C. View Post
I have had the painful electric shocks quite often, more often the milder ones. Has he had an EMG lately? My electrical shocks are horrible for the first few weeks after an EMG. It seems to stir things up.
They did settle down somewhat when I went up to 1800 mg of neurontin.
I have hereditary neuropathy, CMT.
I would agree that after EMG or even exam with tuning forks etc my nerves were stirred up. I also suffer from painful electric shocks.
The frustrating part for him will be the snails pace of the NHS, the stress from sitting on waiting lists can also add to the symptoms. I wish him well.
malawigirl08 is offline   Reply With QuoteReply With Quote
Old 09-06-2011, 06:15 AM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The Quetiapine (Seroquel) is capable of altering blood sugar and raising it. I'd get that checked out ASAP.

I would also get the actual test result from the B12 test. Doctors are still using the old outdated lab ranges, and his "ok" may in fact be low.

Once people who were heavy drinkers, stop, and restore nutrition, any PN present typically can resolve. Benfotiamine (or regular thiamine) may also be helpful for him.

http://neurotalk.psychcentral.com/post653193-4.html

It is possible that all the sedative medications he is taking, are producing a "sedated, or depressed" constellation of side effects. Please keep that in mind.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 09-06-2011, 08:17 AM #4
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default And--

--it would be unusual for there to have been a referral to a neurosurgeon, as opposed to a neuromuscular specialist, unless there was a suspicion of spinal problems (even in the UK I think this would be true).

So, has there been any imaging done to see if there are problems with the spine or adjacent nerve roots?
glenntaj is offline   Reply With QuoteReply With Quote
Old 09-06-2011, 12:58 PM #5
Buttercup40's Avatar
Buttercup40 Buttercup40 is offline
Junior Member
 
Join Date: Jul 2011
Location: North Wales UK
Posts: 23
10 yr Member
Buttercup40 Buttercup40 is offline
Junior Member
Buttercup40's Avatar
 
Join Date: Jul 2011
Location: North Wales UK
Posts: 23
10 yr Member
Default

Thank you all so much for your responses!
He has had no other tests done, only bloods which I've outlined above.
What the specialist will do, we don't know.

I'm really starting to doubt that this is a problem related to when he was drinking, as he has not touch a drop of alcohol for 14 mths. I do have to add I and our children are very, very proud of him!

Mrs D, I will telephone the Dr's tomorrow and ask for the B12 results figures. Is it ok if I come back to you with them?
I have to be honest, I don't really understand the terminology that is used in the forums and the names of treatments and meds means very little to me

He has had an on going back problem, which always seemed related to lifting heavy loads. Since stopping work last year his back has been fine.

Thanks again you lovely people for your help.
With kindest regards
Buttercup x
Buttercup40 is offline   Reply With QuoteReply With Quote
Old 09-06-2011, 02:27 PM #6
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Yes, come back with the numbers and concentration. I believe UK reports a different concentration... pmol/l instead of pg/ml.

I have a conversion factor to change to U.S. concentrations.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Buttercup40 (09-07-2011)
Old 09-07-2011, 10:53 AM #7
Buttercup40's Avatar
Buttercup40 Buttercup40 is offline
Junior Member
 
Join Date: Jul 2011
Location: North Wales UK
Posts: 23
10 yr Member
Buttercup40 Buttercup40 is offline
Junior Member
Buttercup40's Avatar
 
Join Date: Jul 2011
Location: North Wales UK
Posts: 23
10 yr Member
Default

Hi Mrs D, I have two of my hubby's Vit B12 results:
October 2010 202
April 2011 264

I hope you can make sense of this, as I don't have a clue.
Thank you once again
Buttercup x
Buttercup40 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
atypical T.N. and typical T.N. Doodle bug7 Trigeminal Neuralgia 10 12-18-2015 01:35 PM
Cat drinking from faucet...not typical! mrsD Pets & Wildlife 3 09-28-2009 02:49 PM
It is not your typical boxing class Stitcher Parkinson's Disease 0 01-06-2009 09:00 AM
A Typical Oct Morn -- Not! SallyC Multiple Sclerosis 12 10-11-2007 08:07 AM
Typical Friday... colombiangirl1 Creative Corner 0 03-09-2007 05:30 PM


All times are GMT -5. The time now is 10:53 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.