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#1 | ||
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Quote:
They did settle down somewhat when I went up to 1800 mg of neurontin. I have hereditary neuropathy, CMT. |
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"Thanks for this!" says: | Kitt (09-06-2011) |
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#2 | |||
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Member
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The frustrating part for him will be the snails pace of the NHS, the stress from sitting on waiting lists can also add to the symptoms. I wish him well. |
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#3 | |||
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Wisest Elder Ever
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The Quetiapine (Seroquel) is capable of altering blood sugar and raising it. I'd get that checked out ASAP.
I would also get the actual test result from the B12 test. Doctors are still using the old outdated lab ranges, and his "ok" may in fact be low. Once people who were heavy drinkers, stop, and restore nutrition, any PN present typically can resolve. Benfotiamine (or regular thiamine) may also be helpful for him. http://neurotalk.psychcentral.com/post653193-4.html It is possible that all the sedative medications he is taking, are producing a "sedated, or depressed" constellation of side effects. Please keep that in mind.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#4 | ||
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Magnate
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--it would be unusual for there to have been a referral to a neurosurgeon, as opposed to a neuromuscular specialist, unless there was a suspicion of spinal problems (even in the UK I think this would be true).
So, has there been any imaging done to see if there are problems with the spine or adjacent nerve roots? |
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#5 | |||
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Junior Member
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Thank you all so much for your responses!
He has had no other tests done, only bloods which I've outlined above. What the specialist will do, we don't know. I'm really starting to doubt that this is a problem related to when he was drinking, as he has not touch a drop of alcohol for 14 mths. I do have to add I and our children are very, very proud of him! Mrs D, I will telephone the Dr's tomorrow and ask for the B12 results figures. Is it ok if I come back to you with them? I have to be honest, I don't really understand the terminology that is used in the forums and the names of treatments and meds means very little to me ![]() He has had an on going back problem, which always seemed related to lifting heavy loads. Since stopping work last year his back has been fine. Thanks again you lovely people for your help. With kindest regards Buttercup x |
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#6 | |||
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Wisest Elder Ever
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Yes, come back with the numbers and concentration. I believe UK reports a different concentration... pmol/l instead of pg/ml.
I have a conversion factor to change to U.S. concentrations.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Buttercup40 (09-07-2011) |
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#7 | |||
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Junior Member
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Hi Mrs D, I have two of my hubby's Vit B12 results:
October 2010 202 April 2011 264 I hope you can make sense of this, as I don't have a clue. Thank you once again Buttercup x |
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