Hi Electron, thanks for the response.
We are in the UK, so all's we can do is await an appointment from the Neurologist. Because of our location we don't have a resident neurologist at our local hospital.
I've started to question this myself. I'm wondering if the PN pain is masking another problem, more so as things are changing so quickly.
He is having difficulty walking to the bathroom and waits until his bladder is bursting, therefore any exercise is out of the question at the moment.
Since I posted the other day he is getting the very strong electric type shocks in his ankle and kneed joints too.
The pain meds aren't doing much at all
If he is not improved by tomorrow I think I will have to get the Dr back out and request he is taking into hospital.
Thanks
Buttercup x

Is this pain only in joints? PN doesn't do that. The pain may radiate down a nerve and may feel like a joint now and then, but PN pain is more global as a rule.

Pain only in joints suggests some inflammatory problem.
Urinary problems may come from the drugs he is using, as a side effect.

I think his doctors should be more involved and aggressive in finding a cause.

Hi Mrs D, he has the pn pain, burning, over sensitivity etc, also these electrical type pains. The pains in his shoulder, ankle and knee have only started this week.
The pain he is getting in these area's is different to the other pains. The only pain he can liken it to is, if you put your hand in snow or ice but more intense and painful?
Even though the Dr is concerned there is little more he can do if the neurologist will not see Mark sooner.
I feel the only other alternative will be to get him into hospital, which Mark is reluctant to do in case they transfer him to the neurology hospital which is about 45 miles away from our home.
Thanks Mrs D
Regards
Buttercup x

Hi Buttercup
I am also in the UK and it has taken me three years since diagnosis to feel as though I am actually getting someone listening to me - I hope your experience is better but my experience is that as long as referrals meet the 12week target of being seen you then are left to get on with it. I would recommend you try your best to get Mark admitted to hospital, even if it is 45miles away.Good luck.

You know, it is a terrible thought, but severe PN in a person like this progressing rapidly, could be paraneoplastic.

Certain cancers cause PN like this.

Has he had a chest Xray?

http://www.uptodate.com/contents/par...rve-and-muscle

Thank you for this info Mrs D. I have checked out the information on paraneoplastic and thankfully I don't think Mark fits this? The Dr did ask Mark if he had visual disturbance or headaches etc.

He did have a chest X-ray about 3 mths ago, as the Dr suspected he had COPD. There was signs of COPD, but he had the blow tests done and the results were mild COPD.
I'm not going to let this lay, I will be back on to the Dr's if things don't start to settle down.
If anything else comes to mind, please let me know.
Hope your feeling better
Buttercup x

I also meant to add the best thing my GP done for me was to refer me to the Chronic Pain Clinic, they took the time to look at my history and treat me, it has been very successful - you may find they will be able to do more for your husband than the neurologist - just because they give a diagnosis doesnt mean they will be able to provide a treatment but the Pain service treats the pain

Hi Malawigirl, It's over 12 wks since Mark was referred to the neurologist. I did speak to their department which is in Liverpool to ask how long he would have to wait for an appointment and the girl the other end shouted "how long is the waiting time in Wales!" She told me 3 mths, but when his letter first came they wanted him to wait until the end of Nov', I told them he couldn't wait this long and we would travel to Liverpool for an earlier appointment. They then found an appointment in our local hospital for 30th Sept', which has now been changed to 14th Oct'. Poor Mark almost cried when he read the letter!
I could see on Thursday that our Dr was not happy with the way Mark is suffering, but other than him faxing off a letter to the neurologist there is little more he can do.
I can't understand why they have not referred him to the pain clinic? The would seem a normal process to me!
Thanks for the input
Buttercup x

I am so sorry to hear about your husband, Is there any way to get him to a Emergency room, that's what I did last week and they put me in the hospital immediately, I was able to get help very quickly, they did so many tests, sometimes it pays to go through the ER. I hope he feels better soon. Blessings, Jan