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Old 10-04-2011, 04:07 PM #11
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Glenn;

I just pm'd you.

Melody
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Old 10-04-2011, 07:27 PM #12
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Quote:
Originally Posted by mrsD View Post
Mel, if you search ANA, you'll find medical sites that explain the ANA does go up and return to normal... it does change even in people with autoimmune disease.

If Alan has normal kidneys, no butterfly rash on the face, no arthritis, no dry eye or dry mouth, no thyroid disease, or progressing PN up the legs and into the arms, etc, then I guess the doctor will not attend to the result.
The ANA also may not be that high, either.
HI Mrs. D.

No, so far, Alan doesn't have any of those things. His blood tests came back all good in those departments. And his PN never progressed beyond his feet for 20 years.

I guess we'll never find out.

OH well, at least he has fun making videos.

lol

thanks much

Melody
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Old 10-06-2011, 10:26 AM #13
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i dont know if i would buy a false positive rationalization if he has been consistently positive over the years. but apparantly you have to wait to something manifests itself.

i recently tested positive for high levels of muscle enzymes and markers for muscle damage. repeating the test 2 months later everything is now normal. what does it mean, who knows. im already used to a high level of uncertainty just having PN and never being able to know how far and how fast it will go.
awaiting evoked potentials retest results, the first test was unreadable. 1hour and 30 minutes for the first test and 1 hour 50 minutes for the retest. im done with tests for a while.
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Old 10-06-2011, 10:58 AM #14
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Lightbulb

There are medications that can raise the CPK...
including aspirin, alcohol and ampicillin (amoxicillin is metabolized to ampicillin in the body).

It is hard to find the long list I used to have, but if you did not get dark urine, and the level came down quickly, it appears to be a temporary thing for now.

http://www.ehow.com/way_5379029_mean...cpk-level.html
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Old 10-06-2011, 08:24 PM #15
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It depends on how HIGH the ANA is. It is usually expressed in a ratio of 1 to something. 1:80 is considered elevated, but most docs won't blink an eye at this. 1:160, maybe they will look, if you are under age 60. 1:320, a bit more suspicious. Mine is 1:1,280 or greater.

Then they look for a pattern. There are basically 4 patterns and then they can combine those 4 for a bunch of other patterns.

Then they do an ENA, extractable nuclear antigen, which will show up any of the 'usual' culprits, such as Lupus, RA, scleroderma etc....Often this is negative, which doesn't help with determining why one has a high ANA.

Given Alan has psoriasis, I would guess that the ANA is elevated due to that. It can also be elevated when we fight infection. Lupus in a male, Alan's age is unlikely.

Besides, medicine knows diddly squat about autoimmune disease, and the cures are as bad as the disease in some cases.

Right now, there is a huge Lupus campaign going on, 'Could it be Lupus'? Maybe this is because they just launched a new drug the docs have to sell. I don't know, but, unless it is really high, don't fret.
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Old 10-06-2011, 09:23 PM #16
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Hi there.
I'll tell you something I recently noticed. I got a Vitamix almost a month ago. I began to make Alan smoothies and fresh ice cream, and soups.

Do you know his psoriasis is better!!!. Now I have no idea if this is because there are no preservatives in what I make, or the ingredients, or whatever, but his skin is much clearer.

Hey, a little at a time.

But on another note, his PSA is 2.90 which is a FAR CRY from when his number was 13 a few months ago when he had prostatitis.

So I shall continue to Vitamix and sprout and feed this guy GOOD stuff.

Can't hurt, might even help.

lol

Hope all is good at your end.

Melody
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