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Old 11-19-2011, 05:30 PM #1
Geraldine Geraldine is offline
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Join Date: Nov 2011
Posts: 58
10 yr Member
Geraldine Geraldine is offline
Junior Member
 
Join Date: Nov 2011
Posts: 58
10 yr Member
Default when should I start B12 or other supplements

Hi, I've just joined this forum, I just got dx of pn on Monday, I've been having toe pain since July (just after my wisdom tooth extraction - face and toes started it off). I don't know if it has to do with nutrition, which was already poor but I couldn't eat anything for 4 weeks but sugary soft stuff. My toe started hurting exactly one week after finishing the antibiotic.

But my pn might be due to my connective tissue disorder, Mixed Connective Tissue Disease. Although my rheum doesn't seem to think that's bothering me all that much, since my numbers have been down. But during my extraction week for some reason I decided to go off my MCTD meds (plaquenil). Did any of that cause this to progress so rapidly or was I already headed in this direction anyway?

I am extremely scared right now, I have so many problems and now this too. The last couple months I've been to a doctor almost every day, and my insurance is NOT real insurance. I've made an appt with a neurologist but won't get in until Dec. 27. In the meantime, I wanted to start on supplements. My question is, should I start on them or should I wait until my appt.? I know they will run tests, and I don't want to throw any tests off, but that's over a month away and I don't want to waste that time doing nothing about it.

Also, maybe 6 months ago my rheum ran some tests including a B12 test. I was high in B12, she said. Does this mean I don't need to supplement with B12 - or it will not help me at all - or could test have been thrown off by my supplementing with the sublingual form a couple of days before the test? Considering I have autoimmune AND fibromyalgia AND neuropathy I would think that I need high amounts of B12.

I also recently was told I have low lymphocytes and I'm anemic, which apparently I have been in the past and nobody has ever treated me for this. I had no idea. Should I supplement for anemia and how?

Current supplements are multi-vit (RAW for women), E, D3 (I am on the low side testing), Folic Acid, Mobility 2 (chinese herbal from acupuncturist) T3 (new from my hormone doc), progesterone cream (new from my hormone doc), Inflammacore drink mix (from hormone doc), probiotics (trying to remember these)

Medications are plaquenil for MCTD, ambien (if I don't take it I don't sleep, period), and now elavil (rheum gave me for the neuropathy).

I have tried to take magnesium, but I feel worse when I take it- it's called Malic Magnesium and includes high amount of B6, and malic acid. Everytime I start it I feel like I feel worse. I have also tried alpha lipoic acid but then I didn't think I needed it. I thought I had structural problems with my feet. Now I know I should have kept taking it. My toe pain has progressed to include all of both of my feet, and ankles, and it BURNS. or feels like my feet are in ice.

Sorry I just keep writing. If anyone can help me with my supplement question that would be great! Thanks! Oh, and I'm 36 years old with hormone problems - unless those symptoms are related to this.

Geraldine
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