Hi Gail,
Welcome! I can almost hear your level of anxiety jumping off the page and I remember it well. Trust me it settles down once you have had neuropathy for a while. I have had it a little over 3 1/2 years and I am not so afraid anymore. I try not to think too much into the future. Take it one day at a time.
Be smart learn as much as you can. Write a list of questions for your doctor before you go so you don't forget anything. I make one for myself and the doctor so we can both look at them as we go through them. If you can take someone with you who can write down the answers. Sometimes we are so overwhlmed by what we are hearing we forget what was said. Find a doctor that you think you can make a good connection with because you will probably have to see them a few times a year.
It is true the reason for a lot of neuropathies is unknown (idiopathic). I have had every test imaginable and still have no answer. They say it could have been a virus or bacterial infection.
Hang in there and keep coming back!! I have gotten so much from this site and everyone on it. They help me to feel at least somewhat comfortable with what is happening to me. It is a great group!!!

Hi,

I have neuropathy in both my feet from lumbar issues. My friend who is a diabetic, has been suffering for years with this and was thought to be from her diabetes. However, she recently had a mri and found her lumbar region to be a mess. She had a lumbar fusion and that neuropathy is gone. So just suggesting if you haven't had one, a lumbar mri.

Best to all of you,
L

Hello to all. I am new here. I have had an ear condition for a year that has been recently diagnosed as Menieres. I started taking a diuretic and three days into that, I developed Neurological symptoms of a widespread neuropathy. My general doc took me off the med and refuses to believe the med caused the neuropathy. She is searching for another cause. Meanwhile, I worry about the progression of this nerve damage. Is the a relationship between Neuropathy and Menieres? Does anyone know?

Thanks.

Thank you SO much, Hopeful!
I am twovyears in with minor numbness/tingling/ burning and haven't gotten past the scared to death stage yet.
Just want to let you know that, although I LOVE this forum, there aren't enough reassuring posts like yours.
So, thanks again.