Sorry I didn't get back to you sooner. My PN is from the spine all the way down to the feet. I have been on a high dose of narcotics to just make it thru the day.

There was a nerve being crushed at L4-5 which I do think contributed a lot to the PN. Also had laminectomy to allow my spinal cord a little more room. About 2 years later, had bladder surgery which resulted in Edema and the PN worsening and causing additional pain in the legs, ankles and feet. So far, the PN has not gone above the spine.. Hope this info will be of some help.
Gerry

Thanks for info. I am really sorry to hear about your pain. I also had spine surgery this past year and then had a car accident 1 month after surgery and got whiplash with a bad PN flare. I spend somedays angry and somedays I am thankful it's not worse than it is. But whatever the cause of PN it's difficult to deal with. Support is very important.

That is what is so good about this site. We all understand pain; even if you can't see it. That is what others will tell you; like "you look good; you must be feeling better. We can vent here.

That had to be awful; having an accident a month after surgery. How are you doing? I know I pray that God will give us the courage to cope with all of this. It is sooooo difficult.
Gerry