Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Cidp

Reply
 
Thread Tools Display Modes
Old 12-17-2011, 07:08 PM #1
better12 better12 is offline
Junior Member
  
Join Date: Dec 2011
Posts: 18
10 yr Member
better12 better12 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 18
10 yr Member
Default
Hello Hermes:

Encouraging that your enjoyed some relief, despite the side effects mentioned.

For how long have you been dx'd with idiopathic polyneuropathy? Where and what are you symptoms like?

Take Care,

JB

Quote:
Originally Posted by Hermes View Post
Hi everyone,

My Dx has changed from idiopathic polyneuropathy to CIDP based on a lumbar puncture and how I reacted to oral corticosteroids. My neuro put me on 60mg for 4 days and then 40mg for 4 days and then 20mg for 4 days and finally 10mg for 4 days. It worked great at the high dose. We are trying 1000mg of SOLUMEDROL IV once a month for a 6 month trail. Side effects are high blood pressure (my cardio started me on BP meds a couple weeks ago) and a high pulse. I also find that my heart seems to race and I get out of breath easily.

Pain doesn't seem to be a whole lot less but I'm not sure how long before I should show improvement. I had the treatment 11 Nov and 9 Dec. Next one will be mid Jan.

Has anyone here been through this or know about the side effects and how long this should take?

Thanks,
Hermes
"I've always lived with the philosophy that pain hurts!"
better12 is offline   Reply With QuoteReply With Quote
Old 12-18-2011, 08:33 AM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
  
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb
The steroids possibly will raise blood sugar...so you should monitor that.

Over time they tend to create "weakness" as well. This is because they deplete potassium. So that should be monitored.

Calcium and Vit D are also impaired (and this may affect bone density).

I found this article on the net written by a doctor for his patients, and I posted it on MG forum here. It is really the BEST information written well for patients:

http://neurotalk.psychcentral.com/sh...ght=prednisone

So please do read it. It is not long.

And if this is truly an inflammatory problem for you, I'd consider anti-inflammatory--antioxidant support supplements.
Vit C
Grapeseed extract
R-lipoic acid (stablized form).
And eating antioxidant rich foods...blueberries, strawberries etc.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 12-26-2011, 06:25 PM #3
Hermes Hermes is offline
Junior Member
  
Join Date: Aug 2010
Location: Washington DC Area
Posts: 75
10 yr Member
Hermes Hermes is offline
Junior Member
 
Join Date: Aug 2010
Location: Washington DC Area
Posts: 75
10 yr Member
Default
Mrs. D,

Numbness began in my thighs summer 2008. Official Dx was from Johns Hopkins in May 2010. The Dx changed to CIDP in Oct 2011. Symptoms are mostly in the legs and feet. Numbness, pain (sharp, burning, or aching), tingling, and cramping. Occasionally I get a light burning that will go up my back and head onto my face. That hasn't been happening much lately.

Hermes


Quote:
Originally Posted by better12 View Post
Hello Hermes:

Encouraging that your enjoyed some relief, despite the side effects mentioned.

For how long have you been dx'd with idiopathic polyneuropathy? Where and what are you symptoms like?

Take Care,

JB
Hermes is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Hybrid Mode Hybrid Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
cidp Cornelia Peripheral Neuropathy 1 08-06-2010 07:41 PM
Cidp amit Peripheral Neuropathy 2 03-08-2009 01:18 PM
CIDP - the FLU - and PN???? BEGLET Peripheral Neuropathy 13 12-19-2007 06:47 PM
? on CIDP MelodyL Peripheral Neuropathy 8 10-27-2007 07:56 PM
Cidp... aimee New Member Introductions 3 09-03-2007 07:25 AM


All times are GMT -5. The time now is 01:26 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home