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Old 01-10-2012, 10:10 AM #6
Terry Mooney Terry Mooney is offline
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Join Date: Nov 2011
Location: Vernon, BC
Posts: 12
10 yr Member
Terry Mooney Terry Mooney is offline
Junior Member
 
Join Date: Nov 2011
Location: Vernon, BC
Posts: 12
10 yr Member
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Quote:
Originally Posted by hopeful View Post
I have SFN and have pain all of the time. However, last week I started having really bad pain in my arms and back. It is not just the burning. It is alot of muscle and joint pain. It hurts to touch my elbow joints and my hands are really sore as I am typing. As usual it is hard for me to describe. It feels like I have been beaten in my arms. Worse then how you feel when you have the flu but I am not sick. I can't figure it out. I did stop my Plaquenil a while ago but it was a few weeks before these symptoms showed up. I did not like that med it made me feel indifferent to everything and everyone. I figured out it was from that after I ran out and didn't have it for three days. I felt happy again. Then I had it refilled and took it again. Even my husband said he saw a noticeable difference. It has been about a month so I don't think it is from the medication.
Any ideas. I've been waiting to see if it goes away but it has been about a week now. Any thoughts would be appreciated.
I was referred to a rheumatologist for treatment of like symptoms, and was prescribed Plaquenil for 90 days. It had no effect on my symptoms and was discontinued. We learned that Plaquenil was originally created as a treatment for Malaria and was found to be effective in treating rheumatoid arthritis.
The Specialist determined that my condition, did not manifest as an autoimmune problem such as RM and so we stopped following that trail. My PN was generated by a double dose of H1N1 vaccine in the fall of 09 and is currently being treated with Prednisone and a supplement cocktail called MaxiEnergy, with encouraging results.
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