I called my pain management doc yesterday and just let me tell everyone he is a doctor I love (he called back within 5 min). He is the only dr that when he heard about my condition (he was referred to me by my neuro and is at the same university) he said he was going to study and read all that he could about it! He has been very, very helpful and understanding. But he is also just as lost as I am. He knows that there is nothing to be done for ganglioneuritis and we can only treat the pain signals. Mine are on "over-reactive" mode. One of the ways to help my is by using the drug ketamine, which is used many ways, one use is a war-zone anesthesia. It has helped me some what. Not like many other people though. I have to have a fairly high dosage and it has to be applied very, very aggressively; to the point of hallucagentic and black out point. Only then does it help my pain level - which goes away 100%. For as little as a week then tapering back to "normal" levels by less than 5 weeks. I went through this all last spring and summer. It took that long to find the correct method of application and now we now what works. But we also know that it does not solve my pain problem like it does for some people.

Now my dr wants to do another round of ketamine and then implant a neurostimulator.

I would love to be educated on ANY/ALL info/experiences(especially) that people have. I have purposefully avoided just going online and randomly searching, I have found that this site is much, much more educational. Thank you all.