Thank you - all feedback helps. I appreciate you taking the time let me know!

Ketamaine injection or ketamine infusions where it is over hours? I have researched a lot about ketamine infusions and was suggested the scs. I posted about my feelings on the other thread here. If it is an infusion of ketamine it is done with RSD so if you go there you will get feedback on it and also scs. For myself and everyone is different I am more open to the infusions as the SCS there is a lot of fear that the condition could spread to the implant area and also problems with the SCS. I do know someone who has benefited from SCS but a lot of people have problems. Again it is a personal choice and for myself I am very big on getting extra opinions by different doctors.

Its is the injections - done over an hour. 40 mg typically for me - I think. The university where I go does not agree with the heavy dose method right now. You are talking about where thay keep someone sedated with ketamine for a few days? But my pain management dr is actually leaning that way with me a little. I am pretty leary of that method, but have not done any research on either. I just sounds so extreme and scary. I understand the fear factor for RSD and spreading to the implant site - is that what you are battling? I have a friend w/ it and she has been a great support all these years for me. She understands all this crud that now one else does other than this online group does. I have read some of the SCS threads and am more confused than ever. I just don't know what is right for me. In all rights - my condition should "just go away". Ganglioneuritis is not supposed to stick around. But because we can not find out what the trigger is, the inflammation stays. ugh and double-ugh! I think i will go to the RSD thread and look at the ketamine threads to see what people have experienced - maybe it will help. I appreciate your help. I will also consider getting another pain dr's opinion.

Hi.
I have peripheral neuropathy and rsd. If you google Dr Kirkpatrick in Tampa he has videos of people under ketamine infusion. I had a lot of fears like you and still do but the videos actually comforted me though regarding myself I still feel nervous.
Trust me I understand not knowing what is right. I also get a lot of conflicting suggestions by doctors. For ex when I went to a pain doctor he suggested the scs so I went for another opinion who stated a catheter then went for a 3rd opinion and can you believe I got a 3 rd suggestion? I think research and just weighing the pros and cons.

Oh boy what a whirling mass of confusing fun ! So what did you decide? (If you don't mind my asking) How can you get educated yourself when all these educated dr's offer something different - that scares the heebeejeebee's right out of my skin!!!!!! And even doing the research gets confusing and difficult at times. For me, I get frustrated at trying to decipher whether something is sponsored by a particular manufacturer, or company. Also seeing contradicting information, articles or studies and then evaluating them for authenticity - ugh! Why all the inconsistency? My neuro would say because they just don’t understand most pn well enough, and I have to agree after what i have been through and read on this site - its like being in the 1600's and just beginning to explore the earth- and still thinking its flat! There is just so much confusion and controversy with pn. I am stunned on how little is know by the medical world in general. I mean I know 100x more than my pc dr. does just because I am always reading things here and going through what i have gone through. well enough of that

Thanks for the link - i will try to look at the video. I have slow-motion-dial-up and-600-year-old-phone-lines So videos often wont load, but I would like to take a look.

I just got a call from my pm dr and he had talked with my neuro who wants to put me on fish oil and aspirin? uhhhh? I need help with that... Now I think mrsD has talked about fish oil - but is that to help with pn? and what does the aspirin do for pn?

Fish oil and aspirin are anti-inflammatory. If there is an inflammatory aspect to your pain, the aspirin will work.

Some posters here report aspirin helps them.

Fish oil helps with nerve repair of the myelin insulation that may be damaged. It also thins the blood a bit and helps circulation.

You have to be careful with aspirin though, careful to not damage your stomach and small intestine.

Thanks mrsD that helps alot - I have been going crazy doing searches and you had already answered my question - your quick!

p.s. - I love you new kitty pix!

Right now I am holding off on any treatments. The confusion I feel is each doctor has what I call their "thing". So usually and not always but most of the time regardless of difference of patient if you have X dx they will suggest the procedure they do. So if you meet with a pain doctor who does a lot of scs that will be his suggestion but may not be the best for you. The issue with these conditions I feel and even if we use meds for ex what helps one person may not another or what gives a person a side effect may not someone else. I guess for myself if I chose in future to do a treatment I have accepted that it is taking a chance. The chance may make things better but also may come with risks. At least if I get feedback and I really like feedback from patients that I find from sites I can make an informed choice. Good luck with what you decide

Hi Adelina & Daniella, I have had Ketamine treatments. They are not easy. If they work I think they would be worth it. They really take alot out of you. You will really be out of it. You need a lot of support while you are getting them. I did have hallucinations after the treatments. I don't really remember alot while I was having them done. Where I went you had to take Ativan before yu got there. I tended to get sick at my stomach from it so during the rx they gave me IV zofran. They also gave something else with the treatment in your IV but I can't remember for the life of me what it was. I was monitored the entire time to be sure my B/P did not go up and for other s/e.
Unfortunately, I had these treatments under a dx of RSD. After I went through them every doctor I saw after said you ABSOLUTELY do not have RSD. They would ask me who dx it and every single one of them rolled their eyes when I told them. The doctor who diagnosed it told me he could make me pain free so I jumped at it. So be careful!Get more than one opinion on the ketamine. Don't go through it if it is not going to work.
That being said I do believe it is a Godsend for some people. I saw people with RSD get wonderful results with ketamine. Hope this helps.