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Old 03-02-2012, 06:19 PM #1
photogal photogal is offline
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Originally Posted by Sallysblooms View Post
Have you been tested for B12 levels. Also, blood sugar levels (a1c) and vit D?

I would find new doctors that will really find out and know about good blood testing.
she didn't re-do my b-12 in 2010 it was 345, my old doc said that was "perfect"

my vit D is low but not that low I was told 26 I think it is

I have low sugar so my a1c would be fine
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Old 03-02-2012, 06:45 PM #2
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Quote:
Originally Posted by photogal View Post
she didn't re-do my b-12 in 2010 it was 345, my old doc said that was "perfect"

my vit D is low but not that low I was told 26 I think it is

I have low sugar so my a1c would be fine
345 is not "perfect" -- it is below the new low of 400 in US units.

I'd suggest 5mg of methyl B12... the active form orally on an empty stomach, daily. For 3 months and get retested.

The D is low too... 3000IU of D3 OTC daily may help raise you.

Of course you may have OTHER problems but these are obvious...so deal with them first.
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Old 03-02-2012, 07:50 PM #3
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I hope you can find a good doctor that understands these tests. Finding the very basic vitamin levels and getting them up is SO important. A first important step.

Get new testing and then have someone help you test again after being on the supplements.

You might want to read the book "Minding my Mitochondria" by Dr. Terry Wahls. She has a lot of good videos also. She helped her MS that was very bad with food and supplements. I am not saying it would cure everyone, but it is very important to get all of the micronutrients and vitamins and minerals that help the myelin and nerves grow and heal.
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Old 03-02-2012, 10:57 PM #4
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The doc didn't say how much of the b-12 to give in the injection so I did 500mcg. it says every 3 days.

I was told my Vit D and B12 were fine by 2 other docs and said "oh don't worry"

maybe not the cause of the issue but odd to do a test then ignore the result

the tingling is severe
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Old 03-03-2012, 07:23 AM #5
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Default I'd go with Mrs. D suggestions.

They will be more likely to raise your D and B12 levels and keep them there consistently. (B12 injections tend to be "spent" in about 48-72 hours.)

I'd also like to recommend (once again) the Liza Jane spreadsheets, which were developed to list and track almost any kind of test for neurologic symptoms:

www.LizaJane.org

It does sound like you need a new, more extensive work-up, and someone to look at it with fresh eyes.
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Old 03-03-2012, 07:52 AM #6
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Lightbulb

The typical injection dose is 1000mcg.

I'd do that, and not the 500mcg you stated above.

If you are doing injections it is probably cyanocobalamin?

That is a synthetic version, that has been replaced by Methylcobalamin(has no cyanide). Oral daily is far more natural and effective than injections. Some people cannot tolerate the cyanide portion of cyano form and others cannot convert it properly.

Frequent injections of cyano raise this specter of potential of intolerance to cyanide.
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Old 03-03-2012, 06:00 PM #7
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Vit. B6 makes me tingle if I take a normal amount. I have to take less. Perhaps your multi has B6 or you take extra. This is pretty common. Just another idea for you.
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