I thought we had discussed your diagnosis at one point but couldn't remember details. You'll have to pardon me. My memory (and other cognitive functions) are quite problematic and obviously noticeable now. And with the new double vision, I don't spend much time surfing/searching the forum for previous posts, etc.

I wonder if you should dig deeper for more clear answers to your problems. Your presentation and diagnosis are unusual. I'm sure you told me, but again I don't remember, what autoimmune disease do you have that was overwhelmed? Those with AI disease are commonly set into motion by viruses, infections, allergies, even trauma. You might really benefit by knowing more about your condition and what is the root cause. Then you'll be able to better treat the root of the problem...thus helping with the resulting pain you have now. Do you have access to a teaching hospital? Have you had an MRI to rule out any mechanical problems? The lizajane sheets (http://www.lizajane.org) are very helpful to chart testing. Have you had much testing...like skin biopsy, labs for inflammation markers and AI disease, etc? Gosh, I wish someone could help you!!

To answer your question. Yes, I still have ganglioneuropathy. It is not something that will go away (nor have I ever heard of it doing so). There is also no known 'effective' treatment for it.

The MRI just provided the confirmation of the diagnosis. We knew I had some sort of PN from the Sjogren's. Just didn't know the extent until the MRI was done.

I'm so sorry you're suffering with this. I hope someone can help you learn more about the cause so you can have better treatment options. Hope you feel better.