Hello everyone...my name is Sonya and in 2005 I was diagnosed with Multiple Sclerosis and Arnold Chiari Malformation. After searching for answers to the symptoms I had been having, I found a great Neuro and he did more testing and found that I have Sjogren's Syndrome. He questions the MS now, and thinks that I have CNS Sjogren's Syndrome. To me, I guess it doesn't matter what I have...all that matters is that I'm in tremendous pain, and it's only getting worse.

I saw my doctor on Wednesday and he suggested I start on Cell Cept and LDN because I'm on disability and Medicaid won't cover much in the form of more expensive drugs. I have been on Copaxone for the past year for MS.

What brought me to see him and to this forum is the terrible pain I'm starting to have in my legs and feet. I thought maybe I was going through an MS flare up and needed steroids. I have MS type lesions on my brain and spinal cord and last year via MRI it was determined that I was suffering from an active flare up of MS. Needless to say, last year I certainly wasn't in as much pain as I am in now.

Over the past few weeks I've experienced bladder issues (I just can't eliminate), and my legs and feet burn so badly one minute, then are ice cold the next...or they are tingling and numb, or just in terrible pain. My balance is being affected now, and I fall alot. Sometimes touching my legs even hurts! Whats up with that??

I don't know what to do...where to turn. Can anyone direct me where to start in my search for health and wellness? Supplements? Medications? Therapies? Diet? Ahhh...I'm in constant fear that I will lose my legs one day if I don't take drastic measures now to turn things around. Or is it too late?

Please, anyone with any suggestions, I'll listen and take all the advice I can get...I'm a single mom, alone and scared to death and need to be able to take care of my son. I cry alot and try not to let him see, but he see's me stumble and worries.

Sorry for this long post here....I'm just so desperate and in need of advice from someone who knows where I'm at.

Thank you so much!
Sonya