--in people with Sjogren's syndrome, of central nervous system involvement, and apparent "plaquing" on MRI images:

http://neuromuscular.wustl.edu/antib...n.html#sjogren

http://www.sjogrensworld.org/mandel.htm

http://www.medscape.com/medline/abstract/15609267

http://www.ncbi.nlm.nih.gov/pmc/arti...v063p00616.pdf

Thank you to everyone!

I'm in awe really of all the information and support you are giving me. Truly such a blessing, I believe!

The diagnosis of SS was after a lip biopsy...and the doctor that read my lip biopsy was one of the 'toughest doctors' at the University of Chicago to give a positive diagnosis for Sjogren's....at least that's what my Neuro told me. He said my Sjogren's diagnosis, in his mind, is 100%, not to mention the other terrible symptoms of constipation, dry mouth, and dry eyes that I've had for years.

The lesions are indeed what confuses me, and with all that we were doing when I saw my doctor, I am really surprised I didn't ask him what else could cause the lesions. Usually I'm very good at grilling my doctor on everything. Must have been the pain issue's and the begining of my bladder stuff that scared me so much.

Okay, so to understand what to do here, I guess I need to start one med at a time. Should it be the LDN since that seems to help pain? My Dr said the Cell Cept will take two months just to kick in. Ugh. Never ending it seems.

Also, I did see an excellent doctor on my Chiari, and he said NO to surgery for it....until I get the other symptoms I'm having under control. It's funny, well sort of anyway....I had seen two other surgeon's for the Chiari and both wanted to operate immediatly. I'd rather go with someone that is conservative in that area because once you have that painful surgery, there is no going back.

What do you all think of dietary changes? Do those make a big difference?

Thank you so much for any more information....you are all so wonderful.

Before starting a major dietary investigation, I'd keep a food journal for a couple of weeks. See if you find correlations between what you eat and how you feel. Some reactions are delayed next day or so...keep that in mind.

It may give you a direction to take.

One thing you must eliminate is MSG in all its forms, if possible.
This chemical is called an excitotoxin and inflames nerve receptors for pain.

mrsD,

Thank you for the heads up on MSG. So, are you saying I should eliminate all forms, even in canned foods and boxed foods? I'm wondering if MSG has any connection to the pain I'm feeling currently....I mean, when I think about it, I eat alot of chicken that has been marinated in those McCormick season packets. I have never paid attention to the ingrediants in those at all but you can bet I'm going to check into that now. I'm assuming that Sea Salt falls into the same category as table salt. I will have to look that one up.

I really don't mean to complain, however, it does look like all my habits have brought me to this place, and now need to be changed. Saving myself from all of this is worth it, that's for sure, yet I'm such a wimp. Ugh.

Sonya

MSG stimulates the NMDA pain receptors in the body.

It is insidious and hard to tolerate for some people.

Here is a video by Dr. Blaylock MD about it.
http://neurotalk.psychcentral.com/thread166327.html

http://en.wikipedia.org/wiki/Excitotoxicity

Almost all processed foods contain MSG or a variant of it.

And I agree it is difficult to avoid...but you may feel much better if you do.