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#2 | ||
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And if that wasn't enough... Later this afternoon after this first post, I felt a another strange sensation on my lower right leg. Like I was wearing a light sock, except I wasn't. I still have touch sensation and it hurts when I touch it with a pin, just like the other side, but it feels strange. And every once in a while I feel the slightest tingling that quickly seems to go away. It also seems that it takes far less time for my hands or feet to feel tinging if they are in an awkward position and I noticed if I sit very still, I can feel my pulse in my hands (w/o them touching each other of course). Like my first post said, I have been a healthy 42 y-o until just about 3 weeks ago I had ZERO problems. It should be said that about 8 months ago my wife really who had also been healthy developed tingling and numbness on her left side that no one can explain. I have been stressing to a terrible degree about her health (over 6 weeks, dropping from 195 to 178, and now back up to 185) and worried she has MS, no clinical evidence can be found. So 3 weeks ago she wakes me up at 4a saying she can't swallow, I freak thinking it is finally MS kicking in. Turns out to be just a REALLY bad sore throat, and later that night, all these weird sensations started, and have been coming, going, and changing for the past 3 weeks. I am doing my best to stay relaxed, not stress about it, and for probably 2-3 of the past 6 days or so, I was feeling pretty good, until this finger and leg thing started. I have an appt. with my PCP on Wed, and hope to get some tests done and maybe some answers. The researcher and speculator in me thinks this stress/anxiety finally coming out in my physically. Perhaps facilitated by some low or borderline vitamin and/or mineral counts I may have that had never been a problem before. Do ya think I rambled on enough? Any guesses? |
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#5 | ||
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I was, and still am worried about her having ms as the docs can't seem to find any reason for her to be experiencing the symptoms she has. Tingling and numbness on her left side (lower leg, from elbow down, and side of face) with some weakness on that side. All of her blood test, MRIs, cat scans, EMG, all come back normal. I know MS is a diagnosis of exclusion and we have excluded a lot of things. I guess I am just worried that eventually the other foot Is going to drop and she will have other symptoms pop up as her fort exasperation. The other stressor is that we have never dealt with anything like this before.
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#6 | |||
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Wisest Elder Ever
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I have to wonder, as I have been thinking about this coincidence, if there is something toxic in your environment?
water (well water?) mold exposure solvents (new home outgassing) Some medication you are both using? pesticides/insecticides (from exterminators). using lots of dry cleaning for clothes Too much exposure to chorinated pools These are some factors known to affect nerves negatively. Has your wife had B12 tested? low B12 can cause all sorts of neuro symptoms similar to MS. Get the actual test result in numbers, as doctors in US still call very low results "normal". The lab ranges have not been changed to reflect the new knowledge about B12.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#7 | ||
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We do not have well water, we are on city water. Not sure about mold exposure, none that we are aware of. Our home is 24 years old and we have been here about 14 years. It was checked for Radon when we bought it. I have not been on any medication, unless it was an antibiotic or something for a sinus infection. I haven't had one of those in about 4 years. This round of steroids was the first and last med I had been on since then. We only have our house sprayed once a year in the spring for yellow-jackets, and they haven't come this year yet. Very seldom is anything dry cleaned. We hardly ever go into pools, my daughter on the other hand… My wife's B12 numbers are: Vitamin B12: 427, Normal: 221-700 The only numbers that showed low or borderline for her were: B6 29.2, normal 20-125 D25 31.6, normal 21-80 (I have now learned that 50 is more of an accepted normal) Blood Creatine: 0.67, Normal 0.7-1.40 Blood Folate: >18, normal 2.8-18 Her docs didn't think these numbers were that important as they related to her reported symptoms. It surprised me, as I thought any number out of or near out of range would be worth looking at. This is why I am leaning toward my sensations (or sometimes lack there of) as being more stress-related as I thought the odds of 2 married, otherwise healthy people coming down with some neurological issues within 6 months of each other just seemed to long to accept. Or, it has to be as you asked, something environmental. Also, I should say that neither of our kids (15 & 8) have any issues like either of us have that we are aware of. |
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#8 | |||
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Wisest Elder Ever
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Look at drug use.... antibiotics can cause neuropathy.
Flagyl (metronidazole) and fluoroquinilones like Levaquin and Cipro (sometimes used for upper respiratory infections). 427 is about the lowest normal with today's new range. The new testing ranges start at 400. So your wife could help herself with some methylcobalamin 5mg a day on an empty stomach for 3 months, and see if she improves any. If she decides to take some B6, I'd recommend the P5P, which is the activated form. NOW products makes a good affordable one, and only one a day. P5P should be enteric coated to survive the stomach acid. Some patients with neuro symptoms and MS-like diagnoses which are not firm, can have gluten intolerance. So going gluten free for a few months may show improvements. There is testing for this, and you can read more here: http://neurotalk.psychcentral.com/thread1872.html Some people get weird sensations following a viral infection, or vaccine. These may or may not go away, and some neuros tell patients that viral triggers may clear up on their own...but this can take a year or two. PN is very complex, with over 100 triggers. So patience and a detective mindset, are necessary.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | lindsayjane (04-03-2012), NeoGeoH (03-24-2012) |
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