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Old 03-23-2012, 05:20 PM #1
melon melon is offline
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Originally Posted by NeoGeoH View Post
This is my second post, and I am making it as what I am feeling seems different now from before.

neurotalk.psychcentral.com/thread166517.html

My last post described this "Single Point Tingling" I was feeling. Well that is pretty much gone now. At one point I was feeling it on the end of my nose. Starting on March 17th I began a 4mg Medrol Dose Pack, and just finished it last night. I also had fairly constant tingling in 1 toes on my left foot, that has become very faint, but still there.

Starting 2 days ago, I noticed that the pads the fingers of my left hand felt strange. After some experimenting it became clear that they were less sensitive to texture than the fingertips on the same hand or any part of my right hand fingers. Then yesterday, this reduced sensation seemed to no be affecting my right hand as well. It also seems that the actual fingertips are more sensitive that the pads (where you'd take fingerprints) of my fingers. I can still feel things and tell the difference between textures just not as much I remember being able to. Another strange sensation is while walking and swinging my arms, it is like I can feel the blood pushing on my fingers, like when I repeatedly swing my arm to try and get the ketchup to the end bottle. Like increased pressure.

I put a fair bit of my previous sensations down to stress and even anxiety but this seems more like an actual physical condition.

I have a appt. for next Wednesday, and if this doesn't go away, then I am guessing he will run blood work to try and get to the bottom of all this.

Thanks for any input you can offer.
do objects feel lighter to hold or less " firm " , does it vary depending on what you do ?

m
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Old 03-23-2012, 07:50 PM #2
NeoGeoH NeoGeoH is offline
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Originally Posted by melon View Post
do objects feel lighter to hold or less " firm " , does it vary depending on what you do ?

m
It is more like a decreased sensitivity to textures. When this was just on 1 have the frosted glass on the underside of my glass desk felt like an emory bored to my right ringers, but much smoother and less abrasive to my left fingers, now it feels that smooth to both fingers. I can feel that texture a bit more on my fingertips and the texture is still there when I rub my nails on it. And it will scratch my ring.

And if that wasn't enough...

Later this afternoon after this first post, I felt a another strange sensation on my lower right leg. Like I was wearing a light sock, except I wasn't. I still have touch sensation and it hurts when I touch it with a pin, just like the other side, but it feels strange. And every once in a while I feel the slightest tingling that quickly seems to go away. It also seems that it takes far less time for my hands or feet to feel tinging if they are in an awkward position and I noticed if I sit very still, I can feel my pulse in my hands (w/o them touching each other of course).

Like my first post said, I have been a healthy 42 y-o until just about 3 weeks ago I had ZERO problems. It should be said that about 8 months ago my wife really who had also been healthy developed tingling and numbness on her left side that no one can explain. I have been stressing to a terrible degree about her health (over 6 weeks, dropping from 195 to 178, and now back up to 185) and worried she has MS, no clinical evidence can be found. So 3 weeks ago she wakes me up at 4a saying she can't swallow, I freak thinking it is finally MS kicking in. Turns out to be just a REALLY bad sore throat, and later that night, all these weird sensations started, and have been coming, going, and changing for the past 3 weeks. I am doing my best to stay relaxed, not stress about it, and for probably 2-3 of the past 6 days or so, I was feeling pretty good, until this finger and leg thing started.

I have an appt. with my PCP on Wed, and hope to get some tests done and maybe some answers.

The researcher and speculator in me thinks this stress/anxiety finally coming out in my physically. Perhaps facilitated by some low or borderline vitamin and/or mineral counts I may have that had never been a problem before.

Do ya think I rambled on enough?

Any guesses?
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Old 03-23-2012, 08:34 PM #3
NeoGeoH NeoGeoH is offline
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Quote:
Originally Posted by NeoGeoH View Post
It is more like a decreased sensitivity to textures. When this was just on 1 have the frosted glass on the underside of my glass desk felt like an emory bored to my right ringers, but much smoother and less abrasive to my left fingers, now it feels that smooth to both fingers. I can feel that texture a bit more on my fingertips and the texture is still there when I rub my nails on it. And it will scratch my ring.

And if that wasn't enough...

Later this afternoon after this first post, I felt a another strange sensation on my lower right leg. Like I was wearing a light sock, except I wasn't. I still have touch sensation and it hurts when I touch it with a pin, just like the other side, but it feels strange. And every once in a while I feel the slightest tingling that quickly seems to go away. It also seems that it takes far less time for my hands or feet to feel tinging if they are in an awkward position and I noticed if I sit very still, I can feel my pulse in my hands (w/o them touching each other of course).

Like my first post said, I have been a healthy 42 y-o until just about 3 weeks ago I had ZERO problems. It should be said that about 8 months ago my wife really who had also been healthy developed tingling and numbness on her left side that no one can explain. I have been stressing to a terrible degree about her health (over 6 weeks, dropping from 195 to 178, and now back up to 185) and worried she has MS, no clinical evidence can be found. So 3 weeks ago she wakes me up at 4a saying she can't swallow, I freak thinking it is finally MS kicking in. Turns out to be just a REALLY bad sore throat, and later that night, all these weird sensations started, and have been coming, going, and changing for the past 3 weeks. I am doing my best to stay relaxed, not stress about it, and for probably 2-3 of the past 6 days or so, I was feeling pretty good, until this finger and leg thing started.

I have an appt. with my PCP on Wed, and hope to get some tests done and maybe some answers.

The researcher and speculator in me thinks this stress/anxiety finally coming out in my physically. Perhaps facilitated by some low or borderline vitamin and/or mineral counts I may have that had never been a problem before.

Do ya think I rambled on enough?

Any guesses?
And now my left foot feels, for lack of a better term, achy. Not tingling, but achy. More strangeness.
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Old 03-24-2012, 07:08 AM #4
melon melon is offline
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Quote:
Originally Posted by NeoGeoH View Post
It is more like a decreased sensitivity to textures. When this was just on 1 have the frosted glass on the underside of my glass desk felt like an emory bored to my right ringers, but much smoother and less abrasive to my left fingers, now it feels that smooth to both fingers. I can feel that texture a bit more on my fingertips and the texture is still there when I rub my nails on it. And it will scratch my ring.

And if that wasn't enough...

Later this afternoon after this first post, I felt a another strange sensation on my lower right leg. Like I was wearing a light sock, except I wasn't. I still have touch sensation and it hurts when I touch it with a pin, just like the other side, but it feels strange. And every once in a while I feel the slightest tingling that quickly seems to go away. It also seems that it takes far less time for my hands or feet to feel tinging if they are in an awkward position and I noticed if I sit very still, I can feel my pulse in my hands (w/o them touching each other of course).

Like my first post said, I have been a healthy 42 y-o until just about 3 weeks ago I had ZERO problems. It should be said that about 8 months ago my wife really who had also been healthy developed tingling and numbness on her left side that no one can explain. I have been stressing to a terrible degree about her health (over 6 weeks, dropping from 195 to 178, and now back up to 185) and worried she has MS, no clinical evidence can be found. So 3 weeks ago she wakes me up at 4a saying she can't swallow, I freak thinking it is finally MS kicking in. Turns out to be just a REALLY bad sore throat, and later that night, all these weird sensations started, and have been coming, going, and changing for the past 3 weeks. I am doing my best to stay relaxed, not stress about it, and for probably 2-3 of the past 6 days or so, I was feeling pretty good, until this finger and leg thing started.

I have an appt. with my PCP on Wed, and hope to get some tests done and maybe some answers.

The researcher and speculator in me thinks this stress/anxiety finally coming out in my physically. Perhaps facilitated by some low or borderline vitamin and/or mineral counts I may have that had never been a problem before.

Do ya think I rambled on enough?

Any guesses?
No, not really, but Im curious why think your wife might have had MS as opposed to something else ?

m
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Old 03-24-2012, 11:26 AM #5
NeoGeoH NeoGeoH is offline
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No, not really, but Im curious why think your wife might have had MS as opposed to something else ?

m
I was, and still am worried about her having ms as the docs can't seem to find any reason for her to be experiencing the symptoms she has. Tingling and numbness on her left side (lower leg, from elbow down, and side of face) with some weakness on that side. All of her blood test, MRIs, cat scans, EMG, all come back normal. I know MS is a diagnosis of exclusion and we have excluded a lot of things. I guess I am just worried that eventually the other foot Is going to drop and she will have other symptoms pop up as her fort exasperation. The other stressor is that we have never dealt with anything like this before.
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Old 03-24-2012, 01:24 PM #6
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Question

I have to wonder, as I have been thinking about this coincidence, if there is something toxic in your environment?

water (well water?)
mold exposure
solvents (new home outgassing)
Some medication you are both using?
pesticides/insecticides (from exterminators).
using lots of dry cleaning for clothes
Too much exposure to chorinated pools

These are some factors known to affect nerves negatively.

Has your wife had B12 tested? low B12 can cause all sorts of neuro symptoms similar to MS. Get the actual test result in numbers, as doctors in US still call very low results "normal". The lab ranges have not been changed to reflect the new knowledge about B12.
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Old 03-24-2012, 02:49 PM #7
NeoGeoH NeoGeoH is offline
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I have to wonder, as I have been thinking about this coincidence, if there is something toxic in your environment?
Environmental was the first thing I thought of when this started with me.

We do not have well water, we are on city water.
Not sure about mold exposure, none that we are aware of.
Our home is 24 years old and we have been here about 14 years. It was checked for Radon when we bought it.
I have not been on any medication, unless it was an antibiotic or something for a sinus infection. I haven't had one of those in about 4 years. This round of steroids was the first and last med I had been on since then.
We only have our house sprayed once a year in the spring for yellow-jackets, and they haven't come this year yet.
Very seldom is anything dry cleaned.
We hardly ever go into pools, my daughter on the other hand…

My wife's B12 numbers are:
Vitamin B12: 427, Normal: 221-700

The only numbers that showed low or borderline for her were:
B6 29.2, normal 20-125
D25 31.6, normal 21-80 (I have now learned that 50 is more of an accepted normal)
Blood Creatine: 0.67, Normal 0.7-1.40
Blood Folate: >18, normal 2.8-18

Her docs didn't think these numbers were that important as they related to her reported symptoms. It surprised me, as I thought any number out of or near out of range would be worth looking at.

This is why I am leaning toward my sensations (or sometimes lack there of) as being more stress-related as I thought the odds of 2 married, otherwise healthy people coming down with some neurological issues within 6 months of each other just seemed to long to accept. Or, it has to be as you asked, something environmental.

Also, I should say that neither of our kids (15 & 8) have any issues like either of us have that we are aware of.
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Old 03-24-2012, 03:16 PM #8
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Lightbulb

Look at drug use.... antibiotics can cause neuropathy.
Flagyl (metronidazole) and fluoroquinilones like Levaquin and Cipro (sometimes used for upper respiratory infections).

427 is about the lowest normal with today's new range. The new testing ranges start at 400.
So your wife could help herself with some methylcobalamin 5mg a day on an empty stomach for 3 months, and see if she improves any. If she decides to take some B6, I'd recommend the P5P, which is the activated form. NOW products makes a good affordable one, and only one a day. P5P should be enteric coated to survive the stomach acid.

Some patients with neuro symptoms and MS-like diagnoses which are not firm, can have gluten intolerance. So going gluten free for a few months may show improvements. There is testing for this, and you can read more here:
http://neurotalk.psychcentral.com/thread1872.html

Some people get weird sensations following a viral infection, or vaccine. These may or may not go away, and some neuros tell patients that viral triggers may clear up on their own...but this can take a year or two.

PN is very complex, with over 100 triggers. So patience and a detective mindset, are necessary.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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