QUOTE

"malawigirl08 I would love mine once a month but am now fighting with my local hospital as they say it is too expensive and I will only get it every 12weeks- not good. Although I know it really works now as I have not had an infusion for 8 weeks and I am in agony"
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Hon I'm so sorry about your situation. I guess that's the difference between medical care in Canada and in the States. We have a form of insurance they have in Britain, social insurance, similar to what's being fought in the States but NOTHING like Obamacare, although it is government run. All I need when I go to the hospital is my health card.

For prescriptions all seniors have to pay is $5.00 to $6.11 no matter what the cost of the RX.

My once a month treatments are wonderful.

Thanks, people think our NHS in the UK is wonderful as it is free to everyone but there just isn't enough money going in to it now ( although when I see what comes off my salary every month I certainly pay more than my fair share grrhhh). our prescriptions in Scotland are free now but we are at the mercy of number crunchers for our hospital care. Sorry for the rant but my boxing gloves are on, next stop is to the politicians

No but I had prolotherapy with it back in 99 which is what began my downward spiral.

I doubt its toxicity ( though I did ingest potassium cyanide the year before in 98) which probably didnt help

m

As a fellow Scot I have to agree , unless your problems are life threatening or pretty basic , your just going to get told to live with it and some meds, I cant imagine being able to get even a quater of the tests here through National Hell-th Service.

m

Hi I have had two Lidocaine infusions about three years ago, the first one worked for about three days the second one didn't and I had some side effects with the second, the consultant decided to go ahead an try me on the mexilitine, I was fine when I was on the low dosage but when I got to the maximum dose I was passing out and generally felt awful, that was when they thought it was PN I had but my condition has got worse and I have now been diagnosed with small fibre sensory neuronopathy, I have just joined this site in the hope I can get some information about my condition as it is very rare and can't find very much about it. Ihope the information was of some help to you.

Welcome to NeuroTalk:

Neuronopathy is a form of neuropathy, which attacks the cells in the dorsal root gangla.

http://www.penncancer.org/pnd/subpag...1&ss=23&sss=14

Here is our thread on that...http://neurotalk.psychcentral.com/thread147771.html
the first post on this thread explains the new MRI imaging that can be done to visualize this.

Toxins, drugs, viruses and vaccines are thought to be the main culprits. But autoimmune disease and other things may also cause it.

In some people the cells can regenerate, but if the growth factors are genetically missing, this becomes permanent.
Stem cells are being researched for this problem but are not available yet.