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Old 04-18-2012, 07:45 PM #11
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Hi Sue,, I imagine neurologists cover a pretty broad area and PN is a specialty. I wonder if it helps seeing someone who specializes or has expertise in PN. Will be interesting how I go with my neuro today, this has been really messing with my head.

I may book in with neuro that you mentioned, where did you hear about her?

Steve
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Old 04-18-2012, 09:31 PM #12
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Lightbulb ??

http://en.wikipedia.org/wiki/Nerve_conduction_study
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"Thanks for this!" says:
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Old 04-18-2012, 09:57 PM #13
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Thanks very useful as I'm going to see a neuro for the first time today.
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Old 04-19-2012, 01:32 AM #14
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Does this suggest that the nerve test he conducted isn,t the right one to be able to pick up sensory neuropathy?

Sue
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Old 04-19-2012, 06:14 AM #15
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usually an electromyography is done in conduction with a nerve conduction study for the area affected.
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Old 04-19-2012, 06:20 AM #16
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Default The nerve conduction study and electromyography (EMG)--

--is designed to measure the responses of larger-caliber, myelinated sensory and motor nerves. All motor nerves are myelinated, and so are the sensory nerves that sense position, vibration, and mechanical touch.

There are UNmyelinated sensory nerves--the small fiber ones--that sense temperature and pain. These are too small to be measured by standard nerve conduction study techniques. So one could have a small-fiber sensory syndrome and be symptomatic and still show "normal" on a nerve conduction study. Such people tend to have pain and paratheses ("abnormal sensations without source") as paramount symptoms. But one can have a sensory syndrome of the larger fibers that disrupts the other sensory modalities (and often there are symptoms of numbness, or prickles, or jolts, or tingles). Or these can be combined.

The results of the study seems to show that at least in some anatomical areas you've having a problem with the larger sensory nerves, which is consistent with a disruption to the myelin sheathing (myelin is the fatty covering of large nerves that helps sustain and amplify signal impulses).
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Old 04-19-2012, 08:20 AM #17
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Damaged myelin comes from:

toxins
autoimmune disease (the body attacking itself)
multiple sclerosis
vaccine injury

Here is a link explaining it.
http://en.wikipedia.org/wiki/Myelin
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Old 04-19-2012, 09:54 AM #18
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Quote:
Originally Posted by mrsD View Post
Damaged myelin comes from:

toxins
autoimmune disease (the body attacking itself)
multiple sclerosis
vaccine injury

Here is a link explaining it.
I can't see the link?

Last edited by mrsD; 04-19-2012 at 02:24 PM.
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Old 04-19-2012, 01:42 PM #19
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He also got me to walk in a straight line barefoot and to close my eyes and stand still to see if l have any wobbliness. He people with PN in older years, tend to walk with there feet going outwards and unsteady on there feet, lose balance and may need a walking aid, but he said not to worry of me as l will be old in a nursing home by the time that happens.

He said NP is a degenerative condition. I suppose that means its normal part of ageing. He just said, everyone is different. Well that helps heaps.

Sue
You post that you can walk in a straight line barefoot and close your eyes and stand still and no wobbliness. I could at one time as well.

I've seen people walking like a duck (feet outwards) and they are not old and do not have any trouble as far as balance. And I've seen the same with older people.

I am unsteady due to muscle loss from CMT. But I do not, and never have, been duck walking. I am not young either. Just my 2 cents. And yes, everyone is different. I am certainly not saying that you have CMT. That remains to be found out. I hope you get some answers.
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Old 04-19-2012, 01:58 PM #20
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Damaged myelin comes from:

toxins
autoimmune disease (the body attacking itself)
multiple sclerosis
vaccine injury

Here is a link explaining it.
http://en.wikipedia.org/wiki/Myelin
Just adding that Multiple Sclerosis is an autoimmune disease (body attacking itself) for the most part. It is in the CNS (Central Nervous System) brain and spinal cord.

Guillian Barre is another one that affects the myelin. The myelin does come back. But a friend of ours was really, really bad and never came back the same. Another friend was not so bad and so came back to normal. Just depends.

Damaged myelin is also seen in syndromes such as CMT which is of the PNS (Peripheral Nervous System) which is outside the CNS. It does not involve the brain and spinal cord.

Muscular Dystrophy is in the CNS. People are born with diseased nerves. With CMT we are born with healthy nerves and it won't be prevalent unless we inherit the gene.

http://www.lindacrabtree.com/cmt/bas..._article2.html
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Last edited by Kitt; 04-19-2012 at 08:20 PM.
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