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Old 04-20-2012, 03:05 PM #26
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
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10 yr Member
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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You are right, of course, Kitt. CMT can present in lots of ways. I should have phrased my reply more carefully. My childhood clumsiness was very significant to the neurologists in determining a hereditary neuropathic process. At the time I was first diagnosed I didn't mention the symptoms on my father's side since we have never been in contact. My half-sister wore leg braces from childhood, but I didn't make the connection at the time, and my father and his sister may have had symptoms as well. Mine is axonal, type 2, so earlier onset than some.
I have just turned 50 and have had considerable deterioration in the past 4 years. Numbness first appeared about 15 years ago, progression was very slow at first, past my knees now with pins and needles in my thighs and hips.

I only meant to say that a sudden and serious onset like Shezian's is probably not CMT. I haven't read anything in her posts that would seem to support a diagnosis.
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Kitt (04-20-2012)
 


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