Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Sjogren's test negative, but....

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-19-2012, 06:59 AM #5
Idiopathic PN Idiopathic PN is offline
Member
  
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default
Quote:
Originally Posted by en bloc View Post
What test? There are many tests for AI diseases. Can you be more specific? Was it for SSA & SSB?

The lip biopsy is no big deal, really. There are some the get a very small area that is numb or has a lump. I have both but VERY small and certainly not worth complaining about. You are going to find people that have bad experiences with any test out there. Most don't have problems, but when you are reading online, you'll hear about the minority. Keep in mind that all those with good experiences are not going to post online just to say it was fine.

The lip biopsy is the definitive test. Up to 40-50% will be sero-negative for Sjogren's, so the biopsy is the way to go if you have other symptoms and want to confirm or deny Sjogren's. I have all negative blood work, but my lip biopsy clearly shows Sjogren's at end stage.

Have you had a Schirmer's test to determine if you tear production is abnormal?
The tests I had are:

1. Sjorgren's Anti-SS-A
2. Sjorgren's Anti-SS-B
3. Antichromatin Antibodies (not sure if this is related to Sjogren's)
Note: Results for all of these are <2 with reference interval (i guess this refers to normal ranges) as 0.0 - 0.9.

Please take note that when I had these tests, together with a whole bunch of antibodies tests, it was before the onset of my PN symptoms. I had a mass in my lacrimal gland. The opthalmologist poked it to get specimen for biopsy. It was benign (thank God), but after that poking and steroids (localized), I have now dry eyes.

I dont know about Schirmer's test, but everytime I go to my opthalmologist, there is this white strip clipped in my eyelids to test how dry my eyes are. Is this different from Schirmer's test?

If I may ask, what other symptoms do you have for Sjogren's? Did your PN symptoms manifest about the same time when you discovered about the Sjogren's?

Thank you.
Idiopathic PN is offline   Reply With QuoteReply With Quote
 

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Sleep apnea symptoms with negative sleep apnea test results kittycapucine1974 Sleep Apnea & Sleep Disorders 11 11-05-2011 12:28 AM
negative blood test for antibodies Stellatum Myasthenia Gravis 7 07-18-2011 06:11 PM
Sjogren's angelrnblue New Member Introductions 3 10-09-2007 01:59 AM
Interpretting negative test results Cyndi Gluten Sensitivity / Celiac Disease 4 11-14-2006 11:42 PM
Frustrated re b12 deficiency and negative celiac test MotherMoon Gluten Sensitivity / Celiac Disease 7 10-27-2006 07:11 AM


All times are GMT -5. The time now is 09:33 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home